The research is focused on a patient-based social media movement which advocated for
clinical research into a discovery rejected by key elements of the medical establishment …

Background Venoplasty—dubbed the liberation procedure—has been proposed with the
controversial theory of chronic cerebrospinal venous insufficiency (CCSVI), as a possible …

Navigating MS Through The World of Social Media:… | Neurology Academy Academies
Courses & Events Projects Resources News & Articles About us & Our Partners Log in All …

This study examines how a medically contested procedure for people living with multiple
sclerosis was framed by the news media and challenged by user-generated Facebook …

When faced with a diagnosis of multiple sclerosis (MS), patients often turn to the Internet and
social media to find support groups, read about the experiences of other people affected by …

Abstract In 2008, Paulo Zamboni pioneered the 'liberation procedure'for treating multiple
sclerosis (MS), claiming that MS is caused by an abnormality of venous drainage which he …

This thesis describes a Canadian patient movement—largely comprising multiple sclerosis
patients—that has developed around Chronic Cerebrospinal Venous Insufficiency (CCSVI) …

Background: Social network sites (SNSs) are being increasingly used to exchange health
information between patients and practitioners, pharmaceutical companies, and research …

The use of digital technologies and social media by people with serious illness to find,
share, and create health information is much celebrated but rarely critiqued. Proponents …

Background. Despite evidence of the potential importance of the role of health and lifestyle
behaviours in multiple sclerosis (MS) outcomes, there has not been a significant focus on …