Communication difficulties and intellectual disability in end-of-life care

I Tuffrey-Wijne, L McEnhill - International journal of palliative …, 2008 - magonlinelibrary.com
Around 1–3% of the world's population has intellectual disabilities (Mash and Wolfe, 2004).
Communication difficulties are a major obstacle in providing effective palliative care to this …

Improving end-of-life conversations in the post-MAiD era

K Serota, A Ho - Journal of Public Health, 2021 - scholar.archive.org
Legalizing medical assistance in dying (MAiD) has transformed how palliative and hospice
care providers (PHCPs) engage in end of life conversations with patients and their loved …

Communication between healthcare professionals and relatives of patients approaching the end-of-life: A systematic review of qualitative evidence

RJ Anderson, S Bloch, M Armstrong… - Palliative …, 2019 - journals.sagepub.com
Background: Effective communication between healthcare professionals and relatives of
patients approaching the end-of-life is vital to ensure patients have a 'good death'. To …

Interpreting in palliative care: A systematic review of the impact of interpreters on the delivery of palliative care services to cancer patients with limited English …

M Silva, M Genoff, A Zaballa, SM Stabler, F Gany… - 2014 - ascopubs.org
123 Background: According to the 2011 US Census 60% of people living in the US speak a
language other than English at home, and of these approximately 40% have limited English …

End-of-life communication strategies for healthcare professionals: a scoping review

W Chen, JOK Chung, KKW Lam… - Palliative …, 2023 - journals.sagepub.com
Background: Timely and effective communication about end-of-life issues, including
conversations about prognosis and goals of care, are extremely beneficial to terminally ill …

The Complexities of Shared Decision Making in Aged Care

N Scarinci, A Holm, K Torresi… - Journal of Clinical Practice …, 2022 - Taylor & Francis
Inadequate information provision is considered a barrier to informed and shared decision-
making (Joseph-Williams et al., 2013), and lowers client engagement and client outcomes …

Communicating about death and dying with adults with intellectual disabilities who are terminally ill or bereaved: A UK‐wide survey of intellectual disability support …

I Tuffrey‐Wijne, J Finlayson, J Bernal… - Journal of Applied …, 2020 - Wiley Online Library
Background Illness and death are part of life for everyone, including people with intellectual
disabilities. This study investigated the extent to which staff communicate about death with …

A failure to communicate: Let's get real about improving communication at the end of life

J Yingling, M Keeley - American Journal of Hospice and …, 2007 - journals.sagepub.com
Julie Yingling, PhD, and Maureen Keeley, PhD more specifically, and about health
communication in particular. 3 Pertinent to your concerns is our study into final …

Communicating a terminal prognosis in a palliative care setting: deficiencies in current communication training protocols

EM Wittenberg-Lyles, J Goldsmith… - Social science & …, 2008 - Elsevier
The goal of this study was to understand the use and effectiveness of current communication
protocols in terminal prognosis disclosures. Data were gathered from an interdisciplinary …

“But what do they want?” Communication and supported decision-making for people with complex communication needs. Ethical considerations for SLPs.

A Gorman, K Wylie, L Suze - Journal of Clinical Practice in Speech …, 2023 - Taylor & Francis
This paper examines the role of the speechlanguage pathologist (SLP) in supporting
decision-making for people with cognitive disability and complex communication needs …