“Don't Promise Something You can't Deliver:” Caregivers' Advice for Improving Services to Adolescents and Young Adults with Autism

KA Berg, KJ Ishler, S Lytle, R Kaplan… - Autism Research …, 2023 - Wiley Online Library
Approximately 50,000 youths with autism spectrum disorders (ASD) exit US high schools
yearly to enter adult systems of care, many of whom remain dependent on family for day‐to …

[HTML][HTML] Mind the gap: An intervention to support caregivers with a new autism spectrum disorder diagnosis is feasible and acceptable

S Iadarola, M Pellecchia, A Stahmer, HS Lee… - Pilot and feasibility …, 2020 - Springer
Introduction Children with autism spectrum disorder (ASD) benefit when their caregivers can
effectively advocate for appropriate services. Barriers to caregiver engagement such as …

Autism spectrum disorder identification, diagnosis, and navigation of services: Learning from the voices of caregivers

E Crais, CS McComish, EF Kertcher… - Focus on autism …, 2020 - journals.sagepub.com
This study explored caregivers' perspectives on facilitators and barriers to screening,
diagnosis, and identifying and accessing other services for young children with autism …

Service Acquisition for Children with Autism Spectrum Disorder in Rural Southwest Virginia: The Role of Caregiver Psychoeducation

DC Martino, JR Bertollo, A Scarpa - Journal of Autism and Developmental …, 2024 - Springer
Purpose Evidence-based intervention can significantly improve the trajectory of symptoms
and overall outcomes for children with autism spectrum disorder (ASD), especially when …

Barriers to receipt of services for young adults with autism

C Anderson, A Lupfer, PT Shattuck - Pediatrics, 2018 - publications.aap.org
OBJECTIVES: In this study, we examine experiences of families of young adults (YAs) on the
autism spectrum to better understand dynamics leading to poor YA outcomes. METHODS …

Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware

S Srinivasan, A Ekbladh, B Freedman… - Autism Research, 2021 - Wiley Online Library
The study aimed to collect data from families of children and youth with Autism Spectrum
Disorder (ASD) in the state of Delaware, USA to understand their ongoing needs and …

The role of parental advocacy in addressing service disparities for transition-aged youth on the autism spectrum

CE Lee, MM Burke, LS DaWalt, C Li, JL Taylor - Autism, 2022 - journals.sagepub.com
Youth with autism spectrum disorder (ASD) face challenges accessing needed services as
they transition to adulthood. Correlates of service access identified in the literature—such as …

Setting Families Up for Success: A Pilot Study of a Toolkit to Enhance the Autism Spectrum Disorder Diagnostic Evaluation Process

R Haine-Schlagel, C Corsello, B Caplan… - Journal of Autism and …, 2024 - Springer
Abstract Families of children with autism spectrum disorder (ASD) face challenges engaging
in services following diagnosis. This study:(1) developed and implemented a toolkit to tailor …

Parent–caregiver experiences with the autism spectrum disorder service delivery system

A Moodie-Dyer, HD Joyce… - Journal of Family …, 2014 - Taylor & Francis
Autism spectrum disorder (ASD) diagnoses are increasing, leading to growing demands on
the service delivery system to meet the needs of children and families. Further …

Preparing families of young children with autism spectrum disorder for formal school settings

P Morris, JM Weglarz-Ward… - Intervention in School …, 2021 - journals.sagepub.com
Transitioning young children with autism spectrum disorder from the Individuals with
Disabilities Education Improvement Act (IDEA) Part C to Part B 619 is a multifaceted …