A national profile of end-of-life caregiving in the United States

KA Ornstein, AS Kelley, E Bollens-Lund, JL Wolff - Health Affairs, 2017 - healthaffairs.org
To date, knowledge of the experiences of older adults' caregivers at the end of life has come
from studies that were limited to specific diseases and so-called primary caregivers and that …

Spousal caregivers are caregiving alone in the last years of life

KA Ornstein, JL Wolff, E Bollens-Lund, OK Rahman… - Health …, 2019 - healthaffairs.org
Caregiving in the last years of life is associated with increased depression and negative
health outcomes for surviving spouses, many of whom are themselves in poor health. Yet it …

End-of-life care: findings from a national survey of informal caregivers

JL Wolff, SM Dy, KD Frick… - Archives of internal …, 2007 - jamanetwork.com
Background Family and friends are thought to be the predominant providers of end-of-life
care, although nationally representative data on this topic have been lacking. Methods This …

Family caregivers of older adults, 1999–2015: Trends in characteristics, circumstances, and role-related appraisal

JL Wolff, J Mulcahy, J Huang, DL Roth… - The …, 2018 - academic.oup.com
Abstract Purpose of Study To assess trends in family caregiving between 1999 and 2015.
Design and Methods We construct nationally representative profiles of community-dwelling …

Family and other unpaid caregivers and older adults with and without dementia and disability

C Riffin, PH Van Ness, JL Wolff… - Journal of the American …, 2017 - Wiley Online Library
Objectives To estimate the number of caregivers providing assistance to community‐
dwelling older persons with and without dementia and with or without substantial disability; …

[PDF][PDF] Committee on Family Caregiving for Older Adults Board on Health Care Services Health and Medicine Division

R Schulz, J Eden - Families caring for an aging America, 2016 - semisrc.org
This introductory chapter describes the background for the study, the scope of the inquiry,
and the committee's methods and vision for the future. It also reviews current federal …

[PDF][PDF] Informal caregiving for seniors

A Turner, L Findlay - Health Rep, 2012 - academia.edu
Based on data from the 2008/2009 Canadian Community Health Survey–Healthy Aging, this
study examines the characteristics of people aged 45 or older who reported caring for a …

The disproportionate impact of dementia on family and unpaid caregiving to older adults

JD Kasper, VA Freedman, BC Spillman, JL Wolff - Health affairs, 2015 - healthaffairs.org
The number of US adults ages sixty-five and older who are living with dementia is
substantial and expected to grow, raising concerns about the demands that will be placed …

Multifactorial examination of caregiver burden in a national sample of family and unpaid caregivers

C Riffin, PH Van Ness, JL Wolff… - Journal of the American …, 2019 - Wiley Online Library
OBJECTIVES To examine factors associated with caregiver burden from a multifactorial
perspective by examining caregiver and care recipient characteristics and a full range of …

Challenges faced by family caregivers: Multiple perspectives on eldercare

J Strommen, H Fuller, GF Sanders… - Journal of Applied …, 2020 - journals.sagepub.com
The focus of this study was to identify challenges to family eldercare provision from the
perspectives of both caregivers and community stakeholders. This qualitative study used …