Communication difficulties and intellectual disability in end-of-life care

I Tuffrey-Wijne, L McEnhill - International journal of palliative …, 2008 - magonlinelibrary.com
Around 1–3% of the world's population has intellectual disabilities (Mash and Wolfe, 2004).
Communication difficulties are a major obstacle in providing effective palliative care to this …

Supporting patients who have intellectual disabilities: a survey investigating staff training needs

I Tuffrey-Wijne, S Hollins… - International Journal of …, 2005 - magonlinelibrary.com
Aims This article reports on a small exploratory survey aimed at establishing the perceived
training needs of palliative care staff related to supporting people with intellectual …

Communication contexts about illness, death and dying for people with intellectual disabilities and life-limiting illness

K Ryan, S Guerin, P Dodd, J McEvoy - Palliative & supportive care, 2011 - cambridge.org
Objective: The general population has been involved in considerable debate about
communication and awareness within the context of death and dying. However, there has …

Specialist palliative care staff's varying experiences of talking with people with intellectual disability about their dying and death: A thematic analysis of in-depth …

B Foo, M Wiese, B Curryer, RJ Stancliffe… - Palliative …, 2021 - journals.sagepub.com
Background: The cognitive and communication challenges experienced by people with
intellectual disability present difficulties for health professionals, particularly in the face of …

The palliative care needs of people with intellectual disabilities: a case study

I Tuffrey-Wijne - International Journal of Palliative Nursing, 2002 - magonlinelibrary.com
This article describes a case study that aimed to consider the unique needs of a client who
has intellectual disabilities and a terminal illness. Data collection included semi-structured …

Difficulties in identifying distress and its causes in people with severe communication problems

C Regnard, D Mathews, L Gibson… - International journal of …, 2003 - magonlinelibrary.com
In 1999 a palliative care team was established for adults with severe learning disabilities at
Northgate Hospital in the North East of England. It was given NHS Beacon status in 2001 …

Palliative care for patients with communication and cognitive difficulties

K Sue, P Mazzotta, E Grier - Canadian Family Physician, 2019 - cfp.ca
Objective To help increase the confidence of both caregivers and clinicians in providing
palliative care to adults with intellectual and developmental disabilities (IDD) using an easy …

The challenges of providing palliative care for people with intellectual disabilities: a literature review

S Dunkley, R Sales - International Journal of Palliative …, 2014 - magonlinelibrary.com
People with intellectual disabilities are often marginalised from mainstream health-care
services because of the complexities of their disability. They are under-referred to specialist …

Communicating about death and dying with adults with intellectual disabilities who are terminally ill or bereaved: A UK‐wide survey of intellectual disability support …

I Tuffrey‐Wijne, J Finlayson, J Bernal… - Journal of Applied …, 2020 - Wiley Online Library
Background Illness and death are part of life for everyone, including people with intellectual
disabilities. This study investigated the extent to which staff communicate about death with …

Palliative care for disadvantaged groups: people with intellectual disabilities

KR Ryan, R McQuillan - Progress in Palliative Care, 2005 - Taylor & Francis
People with intellectual disabilities are among the most socially excluded and vulnerable
groups in Ireland today. They are at increased risk of early death and they receive poorer …