[HTML][HTML] Alaska Native genomic research: perspectives from Alaska Native leaders, federal staff, and biomedical researchers
VY Hiratsuka, MJ Hahn, RB Woodbury, SC Hull… - Genetics in …, 2020 - Elsevier
Abstract Meaningful engagement of Alaska Native (AN) tribes and tribal health organizations
is essential in the conduct of socially responsible and ethical research. As genomics …
is essential in the conduct of socially responsible and ethical research. As genomics …
[HTML][HTML] Precision medicine research with American Indian and Alaska Native communities: results of a deliberative engagement with tribal leaders
SB Trinidad, E Blacksher, RB Woodbury, SE Hopkins… - Genetics in …, 2022 - Elsevier
Purpose Amid calls for greater diversity in precision medicine research, the perspectives of
Indigenous people have been underexplored. Our goals were to understand tribal leaders' …
Indigenous people have been underexplored. Our goals were to understand tribal leaders' …
Deliberations about genomic research and biobanks with citizens of the Chickasaw Nation
Amid the rapid growth of precision medicine and biobanking initiatives, there have been few
efforts at cataloging the implications of these initiatives for Indigenous communities. A …
efforts at cataloging the implications of these initiatives for Indigenous communities. A …
Genomic research and American Indian tribal communities in Oklahoma: learning from past research misconduct and building future trusting partnerships
JQ Chadwick, KC Copeland, DE Branam… - American journal of …, 2019 - academic.oup.com
Research misconduct and consequential harms have been inflicted upon American
Indian/Alaska Native communities for decades. To protect their people and culture and to …
Indian/Alaska Native communities for decades. To protect their people and culture and to …
Found in translation: Decoding local understandings of genetics and heredity in a Yup'ik Eskimo community
KM West, SE Hopkins, KJ Hopper… - Public …, 2013 - journals.sagepub.com
The Center for Alaska Native Health Research is a community-based participatory research
center that conducts studies involving genetic research with Yup'ik Eskimo community …
center that conducts studies involving genetic research with Yup'ik Eskimo community …
Fostering ethical, legal, and social implications research in tribal communities: The Center for the Ethics of Indigenous Genomic Research
VY Hiratsuka, JA Beans, J Reedy… - Journal of Empirical …, 2020 - journals.sagepub.com
Genomic research raises unique ethical concerns among Alaska Native and American
Indian (AN/AI) people and their communities. The Center for the Ethics of Indigenous …
Indian (AN/AI) people and their communities. The Center for the Ethics of Indigenous …
Sharing results from complex disease genetics studies: a community based participatory research approach
Objectives. Dissemination of research results to communities builds capacity of the
community to understand and utilize the results. The objective of this manuscript was to …
community to understand and utilize the results. The objective of this manuscript was to …
An Alaska Native community's views on genetic research, testing, and return of results: Results from a public deliberation
As genetic testing technology advances, genetic testing will move into standard practice in
the primary care setting. Genetic research, testing, and return of results are complex topics …
the primary care setting. Genetic research, testing, and return of results are complex topics …
The role of race and ethnicity in views toward and participation in genetic studies and precision medicine research in the United States: a systematic review of …
Background Racial/ethnic minority populations in the United States are consistently
underrepresented in genetic research. Large‐scale public participation is required to ensure …
underrepresented in genetic research. Large‐scale public participation is required to ensure …
Genetic research with Indigenous Peoples: perspectives on governance and oversight in the US
NA Garrison, SR Carroll - Frontiers in Research Metrics and Analytics, 2023 - frontiersin.org
Introduction Indigenous Peoples are increasingly exerting governance and oversight over
genomic research with citizens of their nations, raising questions about how best to enforce …
genomic research with citizens of their nations, raising questions about how best to enforce …