Biobanks are controversial due to their ethical, legal, and social implications. Recent
discussion has highlighted a central role for governance in helping to address these …

Biobanks are increasingly hailed as powerful tools to advance health research. The social
and ethical challenges associated with the implementation and operation of biobanks are …

Low levels of public trust in biobanks are perceived to be a deterrent to participation and a
threat to their sustainability. Acting in a “trustworthy” manner is seen to be one approach to …

Biobanks will be essential to facilitate the translation of genomic research into real
improvements to healthcare. Biobanking is a long-term commitment, requiring public support …

Good biobank governance implies—at a minimum—transparency and accountability and
the implementation of oversight mechanisms. While the biobanking community is in general …

Background: Human biobanks are an essential resource for contemporary medical
research, crucial in treating and preventing human diseases and improving health. Public …

With the domestic and international proliferation of biobanks and their associated
connections to health information databases, scholarly attention has been turning from the …

In this chapter I discuss trustworthiness as a quality of biobanks constructed and regulated in
ways that make them serve the expectations donors have. Beginning with a short review of …

Although a few jurisdictions around the world have legislated in response to the
phenomenon of biobanking, the far more common response has been policy led with …

The great interest in biobanks, the related, substantial investments, and the expectations
connected with them raises the question of how to explain the relative successes and …