Background: Intensive care doctors have to find the right balance between sharing crucial
decisions with families of patients on the one hand and not overburdening them on the other …

Children undergoing clinical procedures can experience fear, uncertainty, and anxiety which
can cause them to become upset and resist procedures. This study aimed to capture an …

Aim: The outpatient clinic visit is the major focus of the hospital medical process for most
paediatricians, children and parents. The importance of children as active participants in this …

Without question a child's death is a devastating event for parents and families. Health
professionals working with the dying child and family draw upon their expertise and …

Introduction Although much is asked clinically and emotionally of children and adolescents
who are receiving treatment for a life-threatening illness, they are not routinely asked how …

The Serious Illness Conversation Guide program developed by Ariadne Labs, a Joint Center
for Health Systems Innovation, includes a list of patient-centered questions designed to …

Pediatric hospitalization is a common experience that may increase children's sense of
isolation and impinge on their social-emotional wellbeing. Educators and medical …

In this paper we present DOK, a tangible conversation tool aimed at empowering child
patients during medical triads. Current medical triads tend to exclude child patients, making …

This paper explores the challenges of resolving conflicting feelings around talking with a
child about their terminal prognosis. When children are left out of such conversations it is …

Aims and objectives. To explore children's, parents' and nurses' views on participation in
care in the healthcare setting. Background. Children have a right to be consulted and …