Strategies for meaningful patient and public involvement in neuro-oncological research

K Piil, KB Johannessen, H Pappot - Neuro-Oncology Practice, 2024 - academic.oup.com
While awaiting PPI guidelines in neuro-oncology, the steps and strategies for meaningful
PPI in neurooncological research processes could be (1) develop a clear PPI plan with …

Bridging the Gap: Development of a Patient Public Involvement Group

C Goddard, H Benghiat, F Berki, P Buckle… - Neuro …, 2021 - academic.oup.com
Abstract Aims Every year, the Queen Elizabeth Hospital Birmingham (QEHB) neuro-
oncology team review over 2000 individuals with brain tumour. Patient and public …

The importance of patient and public involvement in cancer research: time to create a new job profile

M Van Hemelrijck, V Peters, JF Loong, B Russell… - Future …, 2021 - Taylor & Francis
The importance of patient and public involvement in cancer research: time to create a new job
profile | Future Oncology Future Medicine Logo Search This Journal Anywhere Quick Search …

Patient and public involvement in cancer research: A scoping review

S Colomer‐Lahiguera, M Steimer, U Ellis… - Cancer …, 2023 - Wiley Online Library
Introduction Patient and public involvement (PPI) in research emphasizes the importance of
doing research with, rather than for people with lived health/illness experience (s). The …

Current trends in patient and public involvement in cancer research: a systematic review

KH Pii, LH Schou, K Piil, M Jarden - Health Expectations, 2019 - Wiley Online Library
Background Patient and public involvement (PPI) in health research is on the rise
worldwide. Within cancer research, PPI ensures that the rapid development of medical and …

How to optimise patient and public involvement in your research: doing science

G Hardavella, A Bjerg, N Saad, T Jacinto, P Powell - Breathe, 2015 - Eur Respiratory Soc
Over the past few years, patient and public involvement (PPI) in research has often been a
key component of successful clinical research grant applications. However, junior …

176 Clinical research participation in neurology

C Jacob, E Copson, I Galea - 2022 - jnnp.bmj.com
The benefits of clinical research for patients are well recognised. The Royal College of
Physicians' recent strategy document 'Benefiting from the research effect'highlights the role …

Good to know–This is PPIE! Development of a training tool for public and patient involvement and engagement in pediatric oncological research

LJ Weiler‐Wichtl, U Leiss, J Gojo… - Cancer …, 2023 - Wiley Online Library
Abstract Background Public and Patient Involvement and Engagement (PPIE) in research is
still a poorly understood and infrequently practiced concept, although the literature stresses …

Patient, Relative and Staff Experiences of Clinical Trial Participation in Neurooncology:“Maybe You Can Also Show the Positive, No Matter How It Ends”

R Thallner, C Gumbinger, A Hohmann… - Cancer Management …, 2024 - Taylor & Francis
Purpose There is a lack of evidence regarding how patients with malignant brain tumor and
their relatives experience participation in neurooncological clinical trials. Similarly, insights …

Patient involvement in oncology research-Development of a reference framework in French-speaking Switzerland

S Colomer-Lahiguera, T Corbière… - Revue Medicale …, 2022 - europepmc.org
Patient and public involvement (PPI) in research is increasingly recognized and encouraged
by public and funding bodies. Although gaining momentum, the implementation of PPI in …