[HTML][HTML] Associations between hospice care and scary family caregiver experiences

EA Luth, PK Maciejewski, V Phongtankuel, J Xu… - Journal of pain and …, 2021 - Elsevier
Context Hospice deaths in the US are increasing. Dying hospice patients may have rapidly
emerging needs the hospice team cannot immediately meet, exposing family caregivers to …

[HTML][HTML] Reciprocal suffering: caregiver concerns during hospice care

E Wittenberg-Lyles, G Demiris, DP Oliver… - Journal of Pain and …, 2011 - Elsevier
CONTEXT: For many hospice caregivers, the constancy and difficulty of caregiving impact
their physical quality of life and cause depression, psychological distress, guilt, loneliness …

The stress of sadness: The most stressful symptoms for hospice family caregivers

KL Ratkowski, KT Washington… - American Journal of …, 2015 - journals.sagepub.com
A family member or friend is often a hospice patient's primary caregiver and, as such, may
face a significant number of stressors, including challenges related to managing patient …

Relationships among symptom management burden, coping responses, and caregiver psychological distress at end of life

KT Washington, CM Wilkes, CR Rakes… - Journal of Palliative …, 2018 - liebertpub.com
Abstract Background: Family caregivers (FCGs) face numerous stressors and are at
heightened risk of psychological distress. While theoretical explanations exist linking …

Pain management concerns from the hospice family caregivers' perspective

NC Chi, G Demiris, KC Pike… - American Journal of …, 2018 - journals.sagepub.com
Background: Pain management is a challenging task for family caregivers in home hospice
care. However, there are limited studies that examine the challenges regarding pain …

Identifying the prevalence and correlates of caregiver-reported symptoms in home hospice patients at the end of life

V Phongtankuel, JA Teresi, JP Eimicke… - Journal of Palliative …, 2020 - liebertpub.com
Background: Symptoms (eg, pain, shortness of breath, and fatigue) at the end of life (EoL)
are common. Although symptoms can contribute to poor quality of life at the EoL, much …

The prevalence and risks for depression and anxiety in hospice caregivers

D Parker Oliver, K Washington, J Smith… - Journal of palliative …, 2017 - liebertpub.com
Background: Depression and anxiety are common concerns for hospice caregivers.
Objective: This study looked at the prevalence and variables associated with hospice …

Informal hospice caregiver pain management concerns: a qualitative study

M Kelley, G Demiris, H Nguyen, DP Oliver… - Palliative …, 2013 - journals.sagepub.com
Background: Informal, unpaid, family caregivers provide much hospice care in the United
States. These caregivers suffer physically, psychologically, emotionally, and socially from …

[HTML][HTML] Hospice caregivers' experiences with pain management:“I'm not a doctor, and I don't know if I helped her go faster or slower”

DP Oliver, E Wittenberg-Lyles, K Washington… - Journal of pain and …, 2013 - Elsevier
Context Those caring for their loved ones in hospice experience tremendous stress, being
faced with numerous decisions as they work to manage the pain experienced by their loved …

Perceptions of a home hospice crisis: an exploratory study of family caregivers

V Phongtankuel, CO Burchett, A Shalev… - Journal of palliative …, 2019 - liebertpub.com
Background: Crises that occur in home hospice care affect family caregivers' satisfaction
with care and increase risk of disenrollment. Because hospice care focuses on achieving a …