What do people with MS want and expect from health‐care services?

M Somerset, R Campbell, DJ Sharp… - Health …, 2001 - Wiley Online Library
Objective To determine the health‐care preferences of people with Multiple Sclerosis (MS).
Design Cross‐sectional survey using a postal questionnaire comprising standardized …

Measuring health outcomes in multiple sclerosis: why, which, and how? Jeremy C Hobart

JC Hobart - Multiple sclerosis: clinical challenges and …, 1997 - books.google.com
This chapter concerns the measurement of health outcomes in multiple sclerosis (MS). The
first section outlines what outcome measurement is, why it is important, why it has become …

Structural and construct validity of the Leeds Multiple Sclerosis Quality of Life scale

I Ensari, RW Motl, E McAuley - Quality of Life Research, 2016 - Springer
Abstract Purpose The Leeds Multiple Sclerosis Quality of Life (LMSQOL) scale was
designed as an 8-item, unidimensional disease-targeted measure of quality of life (QOL) …

A systematic approach to analyse health-related quality of life in multiple sclerosis: the GEDMA study

JM Morales-Gonzales, J Benito-León… - Multiple Sclerosis …, 2004 - journals.sagepub.com
Objective: To describe a holistic and comprehensive approach to the assessment of
sufferer's perceptio ns of health-related quality of life (HRQ oL) in a cohort of multiple …

Health-related quality of life of patients with multiple sclerosis: analysis of ten years of national data

J Li, M Zakeri, GJ Hutton, RR Aparasu - Multiple Sclerosis and Related …, 2022 - Elsevier
Background Multiple sclerosis (MS) is a progressive autoimmune disease of the central
nervous system. Both the physical and mental burden of MS affect patients' health-related …

Feelings of depression, pain and walking difficulties have the largest impact on the quality of life of people with multiple sclerosis, irrespective of clinical phenotype

Y Zhang, BV Taylor, S Simpson Jr… - Multiple Sclerosis …, 2021 - journals.sagepub.com
Background: The symptoms that have the largest impact on health-related quality of life
(HRQoL) in people with multiple sclerosis (MS) may vary by MS phenotype (relapsing …

Patient-reported outcomes and survival in multiple sclerosis: A 10-year retrospective cohort study using the Multiple Sclerosis Impact Scale–29

J Raffel, A Wallace, D Gveric, R Reynolds… - PLoS …, 2017 - journals.plos.org
Background There is increasing emphasis on using patient-reported outcomes (PROs) to
complement traditional clinical outcomes in medical research, including in multiple sclerosis …

“Naming and Framing”: the impact of labeling on health state values for multiple sclerosis

C Green, E Goodwin, A Hawton - Medical Decision Making, 2017 - journals.sagepub.com
Introduction. Health state valuation is a key input in many economic evaluations that inform
resource allocation across competing healthcare interventions. Empirical evidence has …

A health-related quality of life measure for multiple sclerosis

BG Vickrey, RD Hays, R Harooni, LW Myers… - Quality of life …, 1995 - Springer
The need for measures of health-related quality of life (HRQOL) for clinical effectiveness
research and for quality of care research, particularly for chronic diseases, is increasingly …

Change in disability profile and quality of life in multiple sclerosis patients: a five-year longitudinal study using the Multiple Sclerosis Impact Profile (MSIP)

K Wynia, AT Van Wijlen, B Middel… - Multiple Sclerosis …, 2012 - journals.sagepub.com
Background: Evidence on the progress of disease severity in Multiple Sclerosis (MS) is
generally limited in scope. Objectives: To examine the course of a broad spectrum of MS …