Training parents of youth with autism spectrum disorder to advocate for adult disability services: Results from a pilot randomized controlled trial

JL Taylor, RM Hodapp, MM Burke… - Journal of autism and …, 2017 - Springer
This study presents findings from a pilot randomized controlled trial, testing a 12-week
intervention to train parents of youth with autism spectrum disorder (ASD) to advocate for …

[HTML][HTML] Development, feasibility, and acceptability of a nationally relevant parent training to improve service access during the transition to adulthood for youth with …

JL Taylor, F Pezzimenti, MM Burke, LS DaWalt… - Journal of Autism and …, 2022 - Springer
Many youth with autism spectrum disorder (ASD) face challenges accessing needed
services as they transition to adulthood. The present study describes the development …

“I know how to advocate”: Parents' experiences in advocating for children and youth diagnosed with autism spectrum disorder

J Smith-Young, R Chafe, R Audas… - Health services …, 2022 - journals.sagepub.com
Background: Parental advocacy is a dynamic process that changes depending on the
circumstances and needs of the child and parent. Communication deficits related to an …

Randomized pilot study of a special education advocacy program for Latinx/minority parents of children with autism spectrum disorder

P Luelmo, C Kasari, Fiesta Educativa, Inc - Autism, 2021 - journals.sagepub.com
This study reports on a randomized controlled pilot intervention study examining the
effectiveness and feasibility of a low-intensity (ie three sessions), low-cost, parent advocacy …

Brief report: The feasibility and effectiveness of an advocacy program for Latino families of children with autism spectrum disorder

MM Burke, S Magaña, M Garcia, MP Mello - Journal of autism and …, 2016 - Springer
Latino, Spanish-speaking families of children with autism spectrum disorder (ASD) face
unique barriers in special education advocacy. Although advocacy programs are becoming …

Longitudinal change in the use of services in autism spectrum disorder: Understanding the role of child characteristics, family demographics, and parent cognitions

M Siller, N Reyes, E Hotez, T Hutman, M Sigman - Autism, 2014 - journals.sagepub.com
The aim of this study was to identify child characteristics, family demographics, and parent
cognitions that may affect access to early intervention, special education, and related …

Evaluating the efficacy of a special education advocacy training program

MM Burke, SE Goldman, MS Hart… - Journal of Policy and …, 2016 - Wiley Online Library
Increasingly, parents are relying on advocates to ensure that children with disabilities
receive appropriate educational services. As agencies begin to train advocates to work with …

[HTML][HTML] Mind the gap: An intervention to support caregivers with a new autism spectrum disorder diagnosis is feasible and acceptable

S Iadarola, M Pellecchia, A Stahmer, HS Lee… - Pilot and feasibility …, 2020 - Springer
Introduction Children with autism spectrum disorder (ASD) benefit when their caregivers can
effectively advocate for appropriate services. Barriers to caregiver engagement such as …

Effectiveness of a parent-mediated intervention for toddlers with autism spectrum disorder: Evidence from a large community implementation

J Brian, I Drmic, C Roncadin, E Dowds, C Shaver… - …, 2022 - journals.sagepub.com
Recent efforts have focused on developing and evaluating early intervention for toddlers
with probable or emerging autism spectrum disorder. Parent-mediated approaches have …

Young adults on the autism spectrum: The struggle for appropriate services

C Anderson, C Butt - Journal of Autism and Developmental Disorders, 2018 - Springer
Abstract In the United States, young adults with an autism spectrum disorder (ASD) lose
federally mandated supports upon leaving high school. To arrange adult services, families …