Taken together, Tupara's (2012) article on decision making for health research in Aotearoa,
New Zealand, and Sherman and colleagues'(2012) case study from the Peruvian Amazon …

This paper describes capacity development as a key aspect of community-based research
with indigenous communities. University research engagement with indigenous …

Background: Broad participation in genetic research is needed to promote equitable
advances in disease treatment and prevention. Objectives: The objective of the study was to …

Background Health registers play an important role in monitoring distribution of disease and
quality of care; however, benefit is limited if ascertainment (ie, the process of finding and …

We also prioritized communitylevel involvement, and our proj ect was informed by
communitybased participatory research approaches5 and principles of Indigenous data …

Abstract Meaningful engagement of Alaska Native (AN) tribes and tribal health organizations
is essential in the conduct of socially responsible and ethical research. As genomics …

Introduction Community-driven research in primary healthcare (PHC) may reduce the
chronic disease burden in Indigenous peoples. This systematic review assessed the cultural …

PURPOSE This investigation was undertaken to define the barriers to Indigenous peoples
participating in biobanking and genomic research. METHODS A literature review was …

The success of biobanking research relies on the willingness of the public to provide
biological and sociological information, donate tissue samples, and complete psychosocial …

Biobanks raise challenges for developing ethically sound and practicable consent policies.
Biobanks comprised of dried bloodspots (DBS) left over from newborn screening …