A one-year follow-up study of family caregivers of institutionalized elders with dementia

L Lévesque, F Ducharme… - American Journal of …, 2000 - journals.sagepub.com
The purpose of this one-year follow-up study was to determine whether the caregiving
experience of primary caregivers (N= 142) of institutionalized demented elders changed …

Using the life course perspective to study the entry into the illness trajectory: The perspective of caregivers of people with Alzheimer's disease

N Carpentier, P Bernard, A Grenier… - Social science & …, 2010 - Elsevier
The research community is showing increasing interest in the analysis of the care trajectory
of people with chronic health problems, especially dementias such as Alzheimer's disease …

Caring for relatives with dementia—caregiver experiences of relatives of patients on the waiting list for admission to a psychogeriatric nursing home in The …

FJM Meiland, JAC Danse, JF Wendte… - … journal of public …, 2001 - journals.sagepub.com
Aims: Institutionalising a relative is a difficult decision and often relatives have to feel heavily
burdened before they take such a step. Then the following delay because of waiting lists can …

A mixed methods study of hope, transitions, and quality of life in family caregivers of persons with Alzheimer's disease

WD Duggleby, J Swindle, S Peacock, S Ghosh - BMC geriatrics, 2011 - Springer
Background Several research studies have reported the poor quality of life of family
caregivers of persons with Alzheimer's disease (AD). However, factors that influence their …

Differential features of burden between spouse and adult-child caregivers of patients with Alzheimer's disease: an exploratory comparative design

JL Conde-Sala, J Garre-Olmo, O Turró-Garriga… - International journal of …, 2010 - Elsevier
BACKGROUND: Research into burden among spouse and adult-child caregivers of patients
with Alzheimer's disease has generated contradictory results as regards the group which …

Quality of life in dementia, opinions among people with dementia, their professional caregivers, and in literature

DL Gerritsen, RM Dröes, TP Ettema… - … voor gerontologie en …, 2010 - europepmc.org
Different definitions of quality of life (QOL) are found in the literature. This raised the question
which domains are viewed as really important by persons with dementia. In an explorative …

Longitudinal study of the mental health of caregivers caring for elderly patients with dementia: Effect of institutional placement on mental health

O MATSUDA, N HASEBE, K IKEHARA… - Psychiatry and …, 1997 - Wiley Online Library
One hundred and three family caregivers of relatives with dementia were longitudinally
surveyed to examine the course of caregivers' mental health after the relatives had been …

Becoming a family caregiver to a person with dementia: A literature review on the needs of family caregivers

VØ Steenfeldt, LC Aagerup… - SAGE Open …, 2021 - journals.sagepub.com
Introduction The dementia disease affects both the family caregivers' health and social and
psychological well-being. The aim of this review was to identify and describe the needs of …

Being 'alone'striving for belonging and adaption in a new reality–The experiences of spouse carers of persons with dementia

LM Hammar, CL Williams, MS Meranius… - Dementia, 2021 - journals.sagepub.com
Background and aim Spouse carers of a person with dementia report feeling lonely and
trapped in their role, lacking support and having no time to take care of their own health. In …

People with memory illnesses and their spouses as actors in the hybrid care model

O Jolanki, P Eskola, M Aaltonen - Journal of Family Research, 2023 - jyx.jyu.fi
Objective: The study analysed how its participants positioned themselves and other people
as actors in daily life, and what matters they portrayed as meaningful in seeking and …