Smart, vulnerable, playful or just disturbing? A discourse analysis of child involvement in palliative care

I Hogstad, A Jansen - Childhood, 2020 - journals.sagepub.com
In Scandinavian countries, health professionals are legally obliged to involve patients' minor
children. A growing field of research focuses on the support to, and needs and experiences …

Attending to child agency in paediatric palliative care consultations: Adults' use of tag questions directed to the child

K Ekberg, S Ekberg, L Weinglass… - Sociology of Health …, 2022 - Wiley Online Library
Children's agency in their own lives is increasingly recognised as important, including within
paediatric health care. The issue of acknowledging child agency is complex in the context of …

Inclusion and participation in a support programme for bereaved adolescents–relational perspectives from an ethnographic field study in a Swedish context

H Karidar, P Lundqvist… - OMEGA-Journal of Death …, 2023 - journals.sagepub.com
The death of a parent is a life-changing event, and different programmes are developed to
support children. This study explored how parental bereaved adolescents were included …

How children handle life when their mother or father is seriously ill and dying

D Buchwald, C Delmar… - Scandinavian journal of …, 2012 - Wiley Online Library
Scand J Caring Sci; 2012; 26; 228–235 How children handle life when their mother or father
is seriously ill and dying Aims and objectives: The aim of this study was to describe and …

'A team around the child'professionals' experiences of unmet needs, access and expectations in children's palliative care services, a phenomenological study in the …

G Constantinou, EJ Cook, E Tolliday… - Journal of Child …, 2023 - journals.sagepub.com
This study aims to understand the experiences of professionals involved in caring for
families of children with life-limiting illnesses to ascertain unmet needs, access issues and …

[HTML][HTML] Going against patients' will? A qualitative study of how palliative health-care professionals handle competing considerations when children are excluded from …

IJ Hogstad, K Leer-Salvesen - European Journal of Oncology Nursing, 2020 - Elsevier
Abstract Purpose The Norwegian Health Personnel Act (HPA § 10a) obliges health
professionals to contribute to meeting minor children's need for information about their …

Professional carers' experiences of providing a pediatric palliative care service in Ireland

J Clarke, S Quin - Qualitative Health Research, 2007 - journals.sagepub.com
In this article the authors present findings on professional carers' experience of providing
pediatric palliative care to children with life-limiting conditions. For this qualitative study, part …

The influence of actors on the content and execution of a bereavement programme: a Bourdieu-inspired ethnographical field study in Sweden

H Karidar, P Lundqvist, S Glasdam - Frontiers in Public Health, 2024 - frontiersin.org
Introduction The death of a parent can have profound negative impacts on children, and a
lack of adequate support can exacerbate negative life experiences. Aim To explore the …

Inter-professional caring for children who are relatives of cancer patients in palliative care: perspectives of doctors and social workers

H Karidar, S Glasdam - The British Journal of Social Work, 2019 - academic.oup.com
A palliative cancer diagnosis in a parent has a major impact on many aspects of patients'
children. This article aims to explore how doctors and social workers met children as …

[HTML][HTML] Stories of paediatric palliative care: a qualitative study exploring health care professionals' understanding of the concept

K Riiser, H Holmen, A Winger, SA Steindal, C Castor… - BMC Palliative Care, 2022 - Springer
Background By sharing patient stories, health care professionals (HCPs) may communicate
their attitudes, values and beliefs about caring and treatment. Previous qualitative research …