The profile and support needs of parents in paediatric palliative care: comparing cancer and non-cancer groups

SM Aoun, FJ Gill, MB Phillips… - Palliative Care and …, 2020 - journals.sagepub.com
Background: Parents of children with life-limiting illnesses experience considerable burden
and distress, yet few interventions have targeted their well-being. Objectives: Evaluate the …

Experiences and needs of parents of palliative paediatric oncology patients: A meta‐synthesis

AJN Tan, LH Tiew, S Shorey - European journal of cancer care, 2021 - Wiley Online Library
Introduction Despite palliative care being offered to paediatric cancer patients, it has limited
utilisation and often excludes parental support. Therefore, this review aims to consolidate …

The supportive and palliative care needs of Australian families of children who die from cancer

L Monterosso, LJ Kristjanson… - Palliative …, 2009 - journals.sagepub.com
Objective To identify the perceptions of parents of children who died from cancer regarding
the palliative and supportive care they received in hospital and in community settings …

“It is a whole different life from the life I used to live”: assessing parents' support needs in paediatric palliative care

SM Aoun, R Stegmann, R Deleuil, S Momber… - Children, 2022 - mdpi.com
Aims: This feasibility study aimed to systematically identify and address the support needs of
parents of children with life-limiting illnesses and to assess whether the systematic approach …

Supportive and palliative care needs of families of children who die from cancer: an Australian study

L Monterosso, LJ Kristjanson - Palliative medicine, 2008 - journals.sagepub.com
Objective To obtain feedback from parents of children who died from cancer about their
understanding of palliative care, their experiences of palliative and supportive care received …

[HTML][HTML] Concerns of parents with children receiving home-based pediatric palliative care

PR Tutelman, KG Lipak, A Adewumi, MZ Fults… - Journal of pain and …, 2021 - Elsevier
Context Caring for a child who will die from a life-limiting illness is one of the most difficult
experiences a parent may face. Pediatric palliative care (PPC) has grown as a specialty …

The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: a scoping review

FJ Gill, Z Hashem, R Stegmann… - Palliative …, 2021 - journals.sagepub.com
Background: Provision of paediatric palliative care is complex and optimally covers meeting
the individual needs of a heterogenous population of children and their parent caregivers …

Parents' experiences of paediatric palliative care in the community healthcare system: a qualitative study

SA Rud, E Skagestad… - Palliative Care and …, 2023 - journals.sagepub.com
Background: Having a child with a life-limiting illness is a situation that is relatively rare and
represents a multidimensional burden on the family. Paediatric palliative care (PPC) aims to …

Moving toward quality palliative cancer care: parent and clinician perspectives on gaps between what matters and what is accessible

A Kassam, J Skiadaresis, S Habib… - Journal of Clinical …, 2013 - ascopubs.org
Purpose The National Consensus Project (NCP) published a set of standards for quality
palliative care delivery. A key step before applying these guidelines to pediatric oncology is …

Looking back: Identifying supportive care and unmet needs of parents of children receiving specialist paediatric palliative care from the bereavement perspective

A Bronsema, T Theißen, K Oechsle, J Wikert… - BMC palliative …, 2022 - Springer
Background This study examined care needs and utilisation of psychosocial support
services among parents of children who had received specialist paediatric palliative care, as …