The role of brain tumor advocacy groups

M Rhee, P Mui, C Cadogan, J Imerman… - Current neurology and …, 2014 - Springer
The brain tumor community is a unique, underserved population that has not seen
significant improvements in survival over the last four decades. In the search for effective …

PATIENT ADVOCACY-01 WHY IS NEURO-ONCOLOGY MISSING FROM CIVIL SOCIETY CANCER ADVOCACY AGENDA?

D Makumi, R Okumu, R Muya - Neuro-Oncology Advances, 2023 - academic.oup.com
BACKGROUND Cancer civil society and patient groups across Africa play a major role in
pressuring governments to develop, fund, and implement national cancer control plans and …

The Brain Tumor Foundation of Canada: the role of facilitators for its support groups.

KM Ellis - Axone (Dartmouth, NS), 2000 - europepmc.org
The mission of the Brain Tumor Foundation of Canada is to fund brain tumor research, to
provide patient and family support services, and to educate the public. The focus of this …

Optimizing eligibility criteria and clinical trial conduct to enhance clinical trial participation for primary brain tumor patients

EQ Lee, M Weller, J Sul, SJ Bagley… - Neuro …, 2020 - academic.oup.com
Building on an initiative to enhance clinical trial participation involving the Society for Neuro-
Oncology, the Response Assessment in Neuro-Oncology Working Group, patient advocacy …

[HTML][HTML] Implementing a primary healthcare framework: the importance of nursing leadership in developing and maintaining a brain tumor support Group

LJ Nichols - Number 4/August 2015, 2015 - cjon.ons.org
Background: Although brain tumor support groups have been available internationally for
many years, Liverpool Hospital in Australia has not traditionally provided this service. As a …

'Advocacy groups are the connectors': Experiences and contributions of rare disease patient organization leaders in advanced neurotherapeutics

CQ Nguyen, D Kariyawasam… - Health …, 2022 - Wiley Online Library
Introduction Biomedical progress has facilitated breakthrough advanced neurotherapeutic
interventions, whose potential to improve outcomes in rare neurological diseases has …

The role of tumor board conferences in neuro-oncology: a nationwide provider survey

J Snyder, L Schultz, T Walbert - Journal of neuro-oncology, 2017 - Springer
The tumor board or multidisciplinary cancer meeting (MCM) is the foundation of high value
multidisciplinary oncology care, coordinating teams of specialists. Little is known on how …

EXPLORING THE INTERPLAY BETWEEN BRAIN TUMOUR INITIATING CELLS AND THE TUMOUR MICROENVIRONMENT: POTENTIAL TARGETING STRATEGIES …

D Lubanska, S Alrashed, A Sorge… - Neuro-Oncology …, 2023 - academic.oup.com
Brain tumor banking provides an important resource for understanding the underlying
pathophysiology of brain tumors. It requires a multidisciplinary team, including …

Facilitating interventions and/or relationships in malignant brain tumors

P Salander - Advances in therapy, 2010 - Springer
Brain tumors have special oncological significance. The prognosis of brain tumors is mostly
poor, and they are also connected to functional and cognitive deficiencies, as well as …

[PDF][PDF] Treatment update on Brain Tumor: Glioblastoma

J Bruce, DSW Carolyn Messner - Cancer care, 2009 - media.cancercare.org
CancerCare is a national nonprofit organization that provides free professional support
services to anyone affected by cancer: people with cancer, caregivers, children, loved ones …