Defining unmet clinical need across the pathway of brain tumor care: a patient and carer perspective
W Sage, R Fernández-Méndez, A Crofton… - Cancer Management …, 2019 - Taylor & Francis
Objective The aim of this study was to determine the experience of patients with brain tumors
and their carers across distinct parts of their treatment pathway and identify their views on …
and their carers across distinct parts of their treatment pathway and identify their views on …
A qualitative analysis of the benefits and barriers of support groups for patients with brain tumours and their caregivers
S Mallya, M Daniels, C Kanter, A Stone… - Supportive Care in …, 2020 - Springer
Purpose Brain tumours represent a significant burden for patients and caregivers. The aims
of the present study were to explore the perceived benefits of support groups for patients …
of the present study were to explore the perceived benefits of support groups for patients …
Palliative and supportive care in neuro-oncology
DA Forst - CONTINUUM: Lifelong Learning in Neurology, 2020 - journals.lww.com
PURPOSE OF REVIEW This article reviews the supportive care needs of patients with
primary brain tumors and their caregivers, outlines the management of selected common …
primary brain tumors and their caregivers, outlines the management of selected common …
[HTML][HTML] Advocacy groups are crucial players in developing new neurotherapeutics
BL Benderly - NeuroRx, 2004 - ncbi.nlm.nih.gov
Advocacy groups can play a crucial role in speeding new neurotherapeutics to market
because the drug development process offers several important opportunities for them to …
because the drug development process offers several important opportunities for them to …
Is there a role for clinical practice guidelines in multidisciplinary tumor board meetings? A descriptive study of knowledge transfer between research and practice
X Kostaras, MA Shea-Budgell, E Malcolm… - Journal of Cancer …, 2012 - Springer
The aim of this study was to characterize practice patterns and decision-making processes
of healthcare providers attending weekly neuro-oncology tumor board meetings, and to …
of healthcare providers attending weekly neuro-oncology tumor board meetings, and to …
Paving the way to evidence-based clinical practice: Establishing effective caregiver and family support interventions
K Piil, F Boele - Neuro-Oncology Practice, 2023 - academic.oup.com
Over the past decade, there has been significant progress in the field of neuro-oncology
family caregiving research. 1 Following a brain tumor diagnosis, families commonly face …
family caregiving research. 1 Following a brain tumor diagnosis, families commonly face …
DISP-10. ENHANCING TRUST AND REPRESENTATIVE PARTICIPATION IN THE INTERNATIONAL LOW GRADE GLIOMA REGISTRY: COMMUNITY ENGAGEMENT …
L Salmi, J Barnard, C Ritger, R Fischmann… - Neuro …, 2023 - academic.oup.com
Abstract BACKGROUND The International Low Grade Glioma (LGG) Registry is a
community of people with LGGs who have contributed data and specimens to facilitate …
community of people with LGGs who have contributed data and specimens to facilitate …
Multidisciplinary care of patients with brain tumors
T Huang, S Mueller, MJ Rutkowski… - Surgical Oncology …, 2013 - surgonc.theclinics.com
Despite only representing about 2% of all cancer diagnoses, patients with primary brain
tumors are some of the most complex patients in the medical system. Medical personnel …
tumors are some of the most complex patients in the medical system. Medical personnel …