How have patient advocates in the United States benefited cancer research?

D Collyar - Nature Reviews Cancer, 2005 - nature.com
Cancer patient advocates represent those affected by cancer and have a broad view of
cancer research. They are involved in many diverse cancer research committees, where …

Clinical trial participation among patients enrolled in the Glioma Outcomes Project

SM Chang, FG Barker, MH Schmidt, AE Sloan… - Cancer, 2002 - Wiley Online Library
BACKGROUND Patient participation in well‐designed and conducted clinical trials enables
researchers to test new therapies. An understanding of the variables that possibly influence …

[PDF][PDF] QOLP-26. Use of medical assistance in dying (“death with dignity”) in Washington State patients with brain tumors

J Graber, K Sofie, L Taylor - Neuro-Oncology, 2020 - researchgate.net
BACKGROUND: From the time of diagnosis to end of life, patients with primary brain tumors
experience challenges to maintain quality of life. While traditional research focuses on …

Strategies for meaningful patient and public involvement in neuro-oncological research

K Piil, KB Johannessen, H Pappot - Neuro-Oncology Practice, 2024 - academic.oup.com
While awaiting PPI guidelines in neuro-oncology, the steps and strategies for meaningful
PPI in neurooncological research processes could be (1) develop a clear PPI plan with …

[图书][B] Navigating life with a brain tumor

LP Taylor, ABP Umphrey - 2012 - books.google.com
The American Academy of Neurology's (AAN) Neurology Now Books series answer the
questions and concerns of patients and caregivers with specific neurologic diseases who …

Supportive care needs of people with brain tumours and their carers

M Janda, EG Eakin, L Bailey, D Walker… - Supportive Care in Cancer, 2006 - Springer
Goals of work The diagnosis and treatment of a brain tumour may result in long-term
changes in a patient's functional and social abilities and/or in a greatly reduced life span. A …

Impact of provider level, training and gender on the utilization of palliative care and hospice in neuro-oncology: a North-American survey

T Walbert, M Glantz, L Schultz, VK Puduvalli - Journal of neuro-oncology, 2016 - Springer
Specialized palliative care (PC) services have emerged to address symptoms and provide
end-of-life management for patients with brain tumors. The utilization patterns of PC in neuro …

The impact of a dedicated multidisciplinary tumor board on care for patients with brain metastases.

N Wang, JV Cohen, NC Goss, M Bertalan, MC Keeley… - 2019 - ascopubs.org
e13585 Background: Brain metastases are the most common tumors to affect the central
nervous system. Treatment options have recently evolved with the use of targeted therapies …

Improving patient advocacy in NCI scientific steering committees and task forces

R Bangs, JM Lynn, E Obot, S Osborne… - Journal Of The …, 2022 - academic.oup.com
This commentary discusses improving research advocacy as part of National Cancer
Institute (NCI) clinical trial activities in scientific steering committees and task forces between …

Industry progress report on neuro-oncology: Biotech update 2013

M Ottenhausen, I Bodhinayake, M Banu… - Journal of neuro …, 2013 - Springer
For the second time, The Brain Tumor Center of the Weill Cornell Brain and Spine Center, in
collaboration with Voices Against Brain Cancer, hosted The Brain Tumor Biotech Summit in …