Management of multiple sclerosis patients in central European countries: current needs and potential solutions

T Berger, M Adamczyk-Sowa… - Therapeutic …, 2018 - journals.sagepub.com
Multiple sclerosis (MS) experts in Europe are facing rapidly rising demands of excellence
due to the increasing complexity of MS therapy and management. A central European expert …

[HTML][HTML] Multiple sclerosis registry in Germany: results of the extension phase 2005/2006

P Flachenecker, K Stuke, W Elias… - Deutsches Ärzteblatt …, 2008 - ncbi.nlm.nih.gov
Methods After a 2-year pilot phase, the original entry mask was modified, and new centers
were recruited, resulting in the registration of a total of 5821 patients in 2005 and 2006 …

Perspectives in multiple sclerosis health care: Special focus on the costs of multiple sclerosis

Z Rotstein, R Hazan, Y Barak, A Achiron - Autoimmunity Reviews, 2006 - Elsevier
Brain disorders are amongst the leading causes of disease and disability worldwide,
accounting for 35% of the burden of all diseases in Europe. Despite their enormous …

The Swedish MS registry–clinical support tool and scientific resource

J Hillert, L Stawiarz - Acta Neurologica Scandinavica, 2015 - Wiley Online Library
The Swedish MS registry (SMS reg) is designed to assure quality health care for patients
with multiple sclerosis (MS). It has been active since 2001 and web‐based since 2004. It …

Development and pilot phase of a European MS register

P Flachenecker, L Khil, S Bergmann, M Kowalewski… - Journal of …, 2010 - Springer
Abstract The MS-ID (Multiple Sclerosis Information Dividend) project was initiated by the
European Multiple Sclerosis Platform (EMSP) in 2007 in order to identify and address major …

Multiple sclerosis registries in Europe–results of a systematic survey

P Flachenecker, K Buckow, M Pugliatti… - Multiple Sclerosis …, 2014 - journals.sagepub.com
Background: Identification of MS registries and databases that are currently in use in Europe
as well as a detailed knowledge of their content and structure is important in order to …

National MS registries

P Flachenecker, K Stuke - Journal of neurology, 2008 - Springer
This review gives an overview of national registries that are currently in use for patients with
multiple sclerosis (MS). The large-scale registries described herein include the Danish MS …

[PDF][PDF] Access to innovative treatments in multiple sclerosis in Europe

G Kobelt, F Kasteng - A report prepared for the European …, 2009 - comparatorreports.se
MS is an inflammatory and neurodegenerative immuno-mediated disorder of the central
nervous system, characterized by inflammation, demyelination and primary or secondary …

Global assessment of characteristics of multiple sclerosis registries; A systematic review

SG Ezabadi, MA Sahraian, H Maroufi… - Multiple Sclerosis and …, 2022 - Elsevier
Background Developing a multiple sclerosis (MS) registry system in some countries has
helped to recognize better and monitor the disease. This study was aimed to compare global …

[HTML][HTML] Real-world treatment of patients with multiple sclerosis per MS subtype and associated healthcare resource use: an analysis based on 13,333 patients in …

S Müller, T Heidler, A Fuchs, A Pfaff, K Ernst… - Neurology and …, 2020 - Springer
Introduction The aim of this study was to describe the real-word treatment and associated
healthcare resource use (HCRU) of multiple sclerosis (MS) patients, as stratified by different …