Parental autonomy and the obligation not to harm one's child genetically
RM Green - Journal of Law, Medicine & Ethics, 1997 - cambridge.org
Until recently, genetics counselors and medical geneticists considered themselves lucky if
they could provide parents with predictive information about a small number of severe …
they could provide parents with predictive information about a small number of severe …
Informed decisionmaking in genetic counseling: A dissent to the wrongful life debate
AM Capron - Ind. LJ, 1972 - HeinOnline
The relationship between a genetic counselor and his patients is a delicate, complex and
important one. Treating, as it does, subjects of great moment-the prevention of crippling …
important one. Treating, as it does, subjects of great moment-the prevention of crippling …
On being genetically" irresponsible"
J Andre, LM Fleck, T Tomlinson - Kennedy Institute of Ethics Journal, 2000 - muse.jhu.edu
New genetic technologies continue to emerge that allow us to control the genetic
endowment of future children. Increasingly the claim is made that it is morally" irresponsible" …
endowment of future children. Increasingly the claim is made that it is morally" irresponsible" …
Challenging medical-legal norms: the role of autonomy, confidentiality, and privacy in protecting individual and familial group rights in genetic information
GT Laurie - Journal of Legal Medicine, 2001 - Taylor & Francis
Much ink has been spilled discussing the ramifi cations of genetic advances for individuals,
communities, and society at large. A central concern has been the problem of regulating …
communities, and society at large. A central concern has been the problem of regulating …
[图书][B] Genetic counselling: practice and principles
A Clarke - 1994 - books.google.com
Contributions to this study are drawn both from health professionals engaged in genetic
counselling and from observers and critics with backgrounds in law, philosophy, biology …
counselling and from observers and critics with backgrounds in law, philosophy, biology …
Ethics in genetic counselling
AJ Clarke, C Wallgren-Pettersson - Journal of Community Genetics, 2019 - Springer
Difficult ethical issues arise for patients and professionals in medical genetics, and often
relate to the patient's family or their social context. Tackling these issues requires sensitivity …
relate to the patient's family or their social context. Tackling these issues requires sensitivity …
“Family matters”: a conceptual framework for genetic testing in children
A McConkie-Rosell, GA Spiridigliozzi - Journal of genetic counseling, 2004 - Springer
Genetic testing in minor children presents a complex ethical and social problem. Current
guidelines state that genetic testing of children is recommended only under circumstances …
guidelines state that genetic testing of children is recommended only under circumstances …
[图书][B] The status of the family in law and bioethics: the genetic context
R Gilbar - 2017 - taylorfrancis.com
Where do a doctor's responsibilities lie in communicating diagnostic and predictive genetic
information to a patient's family members? On the one hand, a patient may wish to retain …
information to a patient's family members? On the one hand, a patient may wish to retain …
Lethal autonomy: The malfunction of the informed consent mechanism within the context of prenatal diagnosis of genetic variants
C Dunne, C Warren - Issues L. & Med., 1998 - HeinOnline
In this article, Cara Dunne and Catherine Warren challenge the current role of genetic
counselors in advising expectant mothers about potential genetic defects of their fetuses …
counselors in advising expectant mothers about potential genetic defects of their fetuses …
'Wrongful life'lawsuits for faulty genetic counselling: should the impaired newborn be entitled to sue?
A Shapira - Journal of Medical Ethics, 1998 - jme.bmj.com
A" wrongful life" suit is based on the purported tortious liability of a genetic counsellor
towards an infant with hereditary defects, with the latter asserting that he or she would not …
towards an infant with hereditary defects, with the latter asserting that he or she would not …