Genetic information, rights, and autonomy

M Häyry, T Takala - Theoretical Medicine and Bioethics, 2001 - Springer
Rights, autonomy, privacy, and confidentialityare concepts commonly used in
discussionsconcerning genetic information. When theseconcepts are thought of as denoting …

The personal is political, the professional is not: conscientious objection to obtaining/providing/acting on genetic information

J Frader, CL Bosk - American Journal of Medical Genetics Part …, 2009 - Wiley Online Library
Conscientious objection (CO) to genetic testing raises serious questions about what it
means to be a health‐care professional (HCP). Most of the discussion about CO has …

Patients' Rights or Family Responsibilities-Two Approaches to Genetic Testing

L Skene - Med. L. Rev., 1998 - HeinOnline
This paper explores two contrasting approaches to policy making on genetic testing and the
control and use of human tissue and genetic information, especially in the intra-familial …

How much control do children and adolescents have over genomic testing, parental access to their results, and parental communication of those results to others?

EW Clayton - The Journal of Law, Medicine & Ethics, 2015 - Wiley Online Library
How Much Control Do Children and Adolescents Have over Genomic Testing, Parental Access
to Their Results, and Parental Communica Page 1 538 journal of law, medicine & ethics How …

Antenatal genetic testing and the right to remain in ignorance

R Bennett - Theoretical Medicine and Bioethics, 2001 - Springer
As knowledge increases about the human genome, prenatal genetic testing will become
cheaper, safer and more comprehensive. It is likelythat there will be a great deal of support …

Genetic counseling: clinical and ethical challenges

MB Mahowald, MS Verp… - Annual Review of …, 1998 - annualreviews.org
▪ Abstract After explaining the origin, nature, and goals of genetic counseling, we consider
the impact of the Human Genome Project on its practice. In light of the availability of …

Genetic dilemmas and the child's right to an open future

DS Davis - Hastings Center Report, 1997 - Wiley Online Library
Although deeply committed to the model of nondirective counseling, most genetic
counselors enter the profession with certain assumptions about health and disability—for …

Informed consent and the misattributed paternity problem in genetic counseling

EK Lucast - Bioethics, 2007 - Wiley Online Library
When misattributed paternity is discovered in the course of genetic testing, a genetic
counselor is presented with a dilemma concerning whether to reveal this information to the …

Genetic diagnostic information and the duty of confidentiality: ethics and law

C Ngwena, R Chadwick - Medical Law International, 1993 - journals.sagepub.com
The article explores in the context of the duty of confidentiality the ethical and legal
dilemmas posed for the doctor holding a patient's genetic information where there are two …

Legal and ethical implications of fetal diagnosis and gene therapy

GJ Annas, S Elias - American journal of medical genetics, 1990 - Wiley Online Library
With rapidly expanding capabilities in prenatal diagnosis and treatment resulting from new
technologies, the medical profession is increasingly being confronted with legal …