[引用][C] Prescribing our future: ethical challenges in genetic counseling

B LeRoy - 2020 - Routledge

Thresholds and boundaries in the disclosure of individual genetic research results

LG Dressler, ET Juengst - The American Journal of Bioethics, 2006 - Taylor & Francis
Most contemporary “gene-hunting” begins as bench science in molecular genetics and often
has relatively indirect connections with the kinds of clinical services that are relevant to the …

Genetic testing of children for adult-onset diseases: is testing in the child's best interests?

MK Pelias - Mount Sinai Journal of Medicine, 2006 - search.ebscohost.com
Questions related to testing children for adult-onset genetic diseases include many variables
that generate different answers among different families. These issues include the biological …

Value neutrality in genetic counseling: an unattained ideal

CA Rentmeester - Medicine, Health Care and Philosophy, 2001 - Springer
Beginning with a discussion of why value neutrality on the part of the genetics counselor
does not necessarily preserve autonomy of the counselee, the idea that social values …

Ethical issues in genetic counseling: A comparison of MS counselor and medical geneticist perspectives

DF Pencarinha, NK Bell, JG Edwards… - Journal of Genetic …, 1992 - Springer
New technologies available in the field of medical genetics have increased the importance
of responsible ethical decision-making among genetic counselors. A 1985 national survey of …

Wrongful life and wrongful birth: Medical malpractice in genetic counseling and prenatal testing

TDW Rogers III - SCL Rev., 1981 - HeinOnline
In the fifteen years following the seminal case of Gleitman v. Cosgrove," numerous courts
have considered the perplexing problems raised by claims predicated on" wrongful life" 2 or" …

Duty to disclose in medical genetics: a legal perspective

MZ Pelias - American journal of medical genetics, 1991 - Wiley Online Library
As technical knowledge and public information in medical genetics continue to expand, the
geneticist may expect to be held responsible for informing patients and clients about new …

Re-examining the ethics of genetic counselling in the genomic era

W Schupmann, L Jamal, BE Berkman - Journal of bioethical inquiry, 2020 - Springer
Respect for patient autonomy has served as the dominant ethical principle of genetic
counselling, but as we move into a genomic era, it is time to actively re-examine the role that …

In focus. Has patient autonomy gone to far? Geneticists' views in 36 nations.

DC Wertz, JC Fletcher, I Nippert, G Wolff… - The American Journal …, 2002 - europepmc.org
We surveyed genetics professionals, patients, and the public about rights to information, to
requested services, and to parenthood, posing difficult cases found in practice. In all, 2906 …

What should the law say about disclosure of genetic information to relatives

EW Clayton - J. Health Care L. & Pol'y, 1998 - HeinOnline
When a person is diagnosed with a genetic disease or characteristic, his or her relatives are
more likely than others in the general population to be similarly affected. This fact raises a …