Background and Objectives: Little data exist on provider perspectives about counselling and
shared decision-making for complex CHD, ways to support and improve the process, and …

Category/Date Research Poster presented at NAPNAP's 42 nd National Conference on
Pediatric Health Care, March 24 th, 2021. https://napnap21. org/community/#/home …

Background Transitioning from paediatric to adult congenital heart disease (CHD) care is a
high-risk time for being lost to follow-up. Existing CHD transition programmes have not …

Communication between parents and providers of children with cardiac disease is essential
to parental decision-making. This study explored how parents of hospitalized children with …

Objective: To better understand parents' accounts of their prenatal and postnatal experience
after prenatal diagnosis of CHD–particularly emotional processing and coping mechanisms …

Objective: To characterise the parenting priorities of mothers and fathers of infants
hospitalised with CHD and generate recommendations to support parenting during infant …

Background: Parents who receive a diagnosis of a severe, life-threatening CHD for their
foetus or neonate face a complex and stressful decision between termination, palliative care …

ObjectivesParental understanding of their children's heart disease is inadequate, which may
contribute to poor health outcomes. The purpose of this study was to determine what …

Objectives. We examined parental preferences for locus of service delivery for their
teenager's congenital heart disease (CHD) and the influence of disease severity …

Critical heart disease in the pediatric population is associated with high morbidity and
mortality. Research around the most effective communication and decision-making …