Development of the Integrated Parkinson's Care Network (IPCN): Using co-design to plan collaborative care for people with Parkinson's disease

D Kessler, J Hauteclocque, D Grimes, T Mestre… - Quality of life …, 2019 - Springer
Background Parkinson's disease (PD) is a progressive neurological illness that impacts
various aspects of life. Integration of medical and self-management in a collaborative …

Integrated and patient-centred management of Parkinson's disease: a network model for reshaping chronic neurological care

BR Bloem, EJ Henderson, ER Dorsey… - The Lancet …, 2020 - thelancet.com
Chronic neurological diseases are the leading cause of disability globally. Yet, our health-
care systems are not designed to meet the needs of many patients with chronic neurological …

What people with Parkinson's disease want

J Andrejack, S Mathur - Journal of Parkinson's disease, 2020 - content.iospress.com
Parkinson's disease is an incurable, progressive neurodegenerative disease. This condition
is complicated by the varying symptoms in individuals who differ in age of onset, symptoms …

Moving towards integrated and personalized care in Parkinson's disease: A framework proposal for training Parkinson nurses

M van Munster, J Stümpel, F Thieken… - Journal of personalized …, 2021 - mdpi.com
Delivering healthcare to people living with Parkinson's disease (PD) may be challenging in
face of differentiated care needs during a PD journey and a growing complexity. In this …

Multidisciplinary care for people with Parkinson's disease: the new kids on the block!

DLM Radder, NM de Vries, NP Riksen… - Expert review of …, 2019 - Taylor & Francis
Introduction: Parkinson's disease (PD) is a chronic multisystem disorder that causes a wide
variety of motor and non-motor symptoms. Over time, the progressive nature of the disease …

Palliative care and Parkinson's disease: managing the chronic-palliative interface

M Lanoix - Chronic Illness, 2009 - journals.sagepub.com
The increasing numbers of individuals needing palliative services and changing the nature
of these services bring about new challenges for the delivery and accessibility of timely and …

Examining chronic care patient preferences for involvement in health‐care decision making: the case of Parkinson's disease patients in a patient‐centred clinic

N Zizzo, E Bell, AL Lafontaine, E Racine - Health Expectations, 2017 - Wiley Online Library
Background Patient‐centred care is a recommended model of care for Parkinson's disease
(PD). It aims to provide care that is respectful and responsive to patient preferences, values …

Personalized care management for persons with Parkinson's disease

AD van Halteren, M Munneke, E Smit… - Journal of …, 2020 - content.iospress.com
There is a growing awareness that delivery of integrated and personalized care is necessary
to meet the needs of persons living with Parkinson's disease. In other chronic diseases than …

[HTML][HTML] Living with Parkinson's disease: priorities for research suggested by patients

K Schipper, L Dauwerse, A Hendrikx… - Parkinsonism & related …, 2014 - Elsevier
Purpose To describe a study in which patients with Parkinson's disease (PD) were engaged
to list priorities for research to complement the professionals' research agenda. Method The …

Perspectives of people with Parkinson's disease and family carers about disease management in community settings: a cross‐country qualitative study

MV Navarta‐Sánchez, A Palmar‐Santos… - Journal of Clinical …, 2023 - Wiley Online Library
Aim To explore perceptions of people with Parkinson's disease and family carers about the
use and impact of health and social care services, community and voluntary sector …