Living and coping with Parkinson's disease: perceptions of informal carers

D McLaughlin, F Hasson, WG Kernohan… - Palliative …, 2011 - journals.sagepub.com
A review of the literature highlights the important role informal carers play in the provision of
palliative care in the community. In order to explore the caring experience of relatives with …

[引用][C] Striking balances: Living with Parkinson's disease

R Pinder - Understanding health and social care: An introductory …, 1998

[HTML][HTML] Patient-centeredness in PD care: development and validation of a patient experience questionnaire

M van der Eijk, MJ Faber, I Ummels, JWM Aarts… - Parkinsonism & Related …, 2012 - Elsevier
INTRODUCTION: Patient-centeredness is increasingly recognized as a crucial element of
quality of care. A suitable instrument to assess the level of patient-centeredness for …

Multidisciplinary care in Parkinson's disease

MA Qamar, G Harington, S Trump, J Johnson… - International review of …, 2017 - Elsevier
Parkinson's disease (PD) is now known to be a multisystemic and multipeptide
neurodegenerative disorder, whereby patients have an array of symptoms both motor and …

Palliative care and Parkinson's disease: outpatient needs and models of care over the disease trajectory

CG Tarolli, RG Holloway - Annals of palliative medicine, 2020 - apm.amegroups.org
A palliative approach to care is person-centered and aims to minimize overall disease
burden among patients with serious illnesses. There is rising interest in the role of palliative …

Revolutionising management of chronic disease: the ParkinsonNet approach

BR Bloem, M Munneke - Bmj, 2014 - bmj.com
Patients with Parkinson's disease need long term support to manage their condition.
Bastiaan Bloem and Marten Munneke describe the benefits of a model of integrated care …

Parkinson matters

SKL Darweesh, KG Raphael, P Brundin… - Journal of …, 2018 - content.iospress.com
Recent epidemiological observations have drawn attention to the rapid rise in the burden
caused by Parkinson's disease over the past years, emphasizing that Parkinson's disease is …

Patient-centered integrated healthcare improves quality of life in Parkinson's disease patients: a randomized controlled trial

C Eggers, R Dano, J Schill, GR Fink, M Hellmich… - Journal of …, 2018 - Springer
Introduction Improving quality of life (QoL) is a key issue when dealing with Parkinson's
disease (PD). Integrative care shows potential to achieve improvements in QoL. Here, we …

Parkinson's disease, palliative care and older people: Part 2

S Thomas, D MacMahon - Nursing older people, 2004 - journals.rcni.com
In the second of two articles on palliative care for people with Parkinson's disease, the
authors consider other aspects of care relevant to this complex stage. They conclude that …

Influencing factors when living with Parkinson's disease: A cross‐sectional study

L Ambrosio, MC Portillo… - Journal of Clinical …, 2019 - Wiley Online Library
Aims and objectives To identify the personal‐and disease‐related factors that are
associated with living with Parkinson's disease. Background Living with Parkinson's disease …