Identifying the unique aspects of adolescent and young adult palliative care: a case study to propel programmatic changes in pediatric hospitals

L Humphrey, ML Dell - Seminars in Pediatric Neurology, 2015 - Elsevier
Using a case study, in this article we seek to highlight how the distinct developmental needs
of adolescent and young adult patients facing a life-threatening condition require a different …

A Parent's journey: Incorporating principles of palliative care into practice for children with chronic neurologic diseases

A Brown, JD Clark - Seminars in Pediatric Neurology, 2015 - Elsevier
Rather than in conflict or in competition with the curative model of care, pediatric palliative
care is a complementary and transdisciplinary approach used to optimize medical care for …

Adolescents and young adults with life-threatening illness: special considerations, transitions in care, and the role of pediatric palliative care

JS Linebarger, TA Ajayi, BL Jones - Pediatric Clinics, 2014 - pediatric.theclinics.com
Adolescents and young adults (AYAs) represent a distinctive group of young people who are
either experiencing, or have recently experienced a period of accelerated growth and …

[HTML][HTML] Pediatric palliative care in the multicultural context: findings from a workshop conference

AR Rosenberg, K Bona, T Coker, C Feudtner… - Journal of pain and …, 2019 - Elsevier
Context In our increasingly multicultural society, providing sensitive and respectful pediatric
palliative care is vital. Objectives We held a one-day workshop conference with stakeholders …

Up against the system: a case study of young adult perspectives transitioning from pediatric palliative care

K Cook, H Siden, S Jack, L Thabane… - Nursing Research and …, 2013 - Wiley Online Library
Advances in pediatric care have not provided the interdisciplinary support services required
by those young adults with pediatric life‐threatening conditions (pedLTCs) who live beyond …

Partnerships between pediatric palliative care and psychiatry

C Knapp, V Madden, D Button… - Child and …, 2010 - childpsych.theclinics.com
Children with life-threatening illnesses and their families may face physical, emotional,
psychosocial, and spiritual challenges throughout the children's course of illness. Pediatric …

Pediatric palliative care and child psychiatry: a model for enhancing practice and collaboration

AC Muriel, J Wolfe, SD Block - Journal of palliative medicine, 2016 - liebertpub.com
As the field of Pediatric Palliative Care continues to develop, it is important to consider the
scope of practice and the utility of collaboration with other specialties, including child and …

Pediatric palliative care

JC Klick, J Hauer - Current problems in pediatric and adolescent health …, 2010 - Elsevier
Palliative care has always been a part of the care of children. It includes any intervention that
focuses on relieving suffering, slowing the progression of disease, and improving quality of …

Interdisciplinary symptom management in pediatric palliative care: A case report.

RA Kentor, P Krinock, J Placencia… - Clinical practice in …, 2021 - psycnet.apa.org
Objective: Pediatric palliative care (PPC) services strive to prevent and relieve suffering
among children, adolescents, and young adults with chronic and/or life-limiting illnesses …

Palliative care for children in hospital: essential roles

R Drake - Children, 2018 - mdpi.com
Palliative care for children in pediatric hospitals is a vital part of the network of services
supporting children with severe illness. This has been recognized, with a trend over the past …