Ethical issues in predictive genetic testing: a public health perspective

KG Fulda, K Lykens - Journal of medical ethics, 2006 - jme.bmj.com
As a result of the increase in genetic testing and the fear of discrimination by insurance
companies, employers, and society as a result of genetic testing, the disciplines of ethics …

Willingness to participate in genomics research and desire for personal results among underrepresented minority patients: a structured interview study

SC Sanderson, MA Diefenbach, R Zinberg… - Journal of community …, 2013 - Springer
Patients from traditionally underrepresented communities need to be involved in discussions
around genomics research including attitudes towards participation and receiving personal …

[引用][C] Genetic testing and the family

JR Sorenson, JR Botkin - … Journal of Medical Genetics Part C …, 2003 - Wiley Online Library
A phrase that one frequently reads in the research literature on genetic testing, in
commentaries by providers of genetic services, and in discussions of the ethical and legal …

Anticipating unfair uses of genetic information.

W Allen, H Ostrer - American journal of human genetics, 1993 - ncbi.nlm.nih.gov
The Ethical, Legal and Social Issues (ELSI) Program was established by the Human
Genome Initiative of the Na-tional Institutes of Health (NIH) and the Department of Energy …

Genetics and confidentiality

DW Brock - American Journal of Bioethics, 2001 - Taylor & Francis
David Doukas and Jessica Berg's (2001) proposal for the use of a family covenant in genetic
testing has promise in helping ensure that genetic information with important consequences …

Ethics and genetics in international perspective: results of a survey

DC Wertz - The New Genetics: From Research into Health Care …, 1999 - Springer
Ethics and Genetics in International Perspective: Results of a Survey Page 1 Ethics and
Genetics in International Perspective: Results of a Survey DOROTHY C. WERTZ Full discussion …

[HTML][HTML] Ethical issues in contemporary clinical genetics

G Braverman, ZE Shapiro, JA Bernstein - Mayo Clinic Proceedings …, 2018 - Elsevier
As genetic sequencing capabilities become more powerful and costs decline, the reach of
genomics is expanding beyond research laboratories to the wards, outpatient clinics, and …

Ethics of genetic screening: the first report of the Nuffield Council on Bioethics.

R Gillon - Journal of medical ethics, 1994 - ncbi.nlm.nih.gov
The first report of the UK's nearest equivalent to a national bioethics committee was
published at the end of last year. In the report-on ethical issues in genetic screening (1)-the …

Genetic moralism and health

T Takala - Cambridge Quarterly of Healthcare Ethics, 2019 - cambridge.org
This article examines the moralistic language and arguments used in relation to genetics.
The focus is on three practices:(1) the claims that there is a duty to know about one's own …

Rationale for an integrated approach to genetic epidemiology.

CM Laberge, BM Knoppers - Bioethics, 1992 - europepmc.org
Conclusion Genetic knowledge is now in the public domain and its interpretation by the
media and the citizens brings the issues into the public forum of discussion for the necessary …