Enhancing shared and surrogate decision making for people living with dementia: a systematic review of the effectiveness of interventions

A Geddis‐Regan, L Errington, C Abley… - Health …, 2021 - Wiley Online Library
Background Dementia can have a profound impact on decision making. People living with
dementia (PLwD) often need to make decisions about health care, and, as dementia …

Shared decision-making in persons living with dementia: A scoping review

MK Mattos, JS Gibson, D Wilson, L Jepson, S Ahn… - …, 2023 - journals.sagepub.com
Evidence supports that older adults with cognitive impairment can reliably communicate
their values and choices, even as cognition may decline. Shared decision-making, including …

Role of advance care planning in proxy decision making among individuals with dementia and their family caregivers

J Kwak, JA De Larwelle, KOC Valuch… - Research in …, 2016 - journals.healio.com
Health care proxies make important end-of-life decisions for individuals with dementia. A
cross-sectional survey was conducted to examine the role of advance care planning in proxy …

Improving decision‐making for feeding options in advanced dementia: a randomized, controlled trial

LC Hanson, TS Carey, AJ Caprio… - Journal of the …, 2011 - Wiley Online Library
Objectives To test whether a decision aid improves quality of decision‐making about feeding
options in advanced dementia. Design Cluster randomized controlled trial. Setting Twenty …

A feasibility study of a decision aid to support family carers of people with severe dementia or those towards the end-of-life

N Davies, N Aker, V Vickerstaff… - Palliative …, 2022 - journals.sagepub.com
Background: Advance care planning in dementia does not always happen. As dementia
progresses, decisions are often left for family carers to make with professionals. Aim: To test …

Advance care planning in different settings for people with dementia: a systematic review and narrative synthesis

AJ Kelly, T Luckett, JM Clayton, L Gabb… - … & supportive care, 2019 - cambridge.org
BackgroundAdvance care planning (ACP) is identified as being an important process for
people with dementia. However, its efficacy for improving outcomes relevant for the …

How do persons with dementia participate in decision making related to health and daily care? A multi-case study

KL Smebye, M Kirkevold, K Engedal - BMC health services research, 2012 - Springer
Background Many countries have passed laws giving patients the right to participate in
decisions about health care. People with dementia cannot be assumed to be incapable of …

Consensus views on advance care planning for dementia: a Delphi study

JB Sinclair, JR Oyebode… - Health & social care in the …, 2016 - Wiley Online Library
The uptake of advance care planning (ACP) is particularly low among people with dementia.
This may reflect barriers to communication between professionals, patients and families in …

Shared decision-making for people living with dementia in extended care settings: a systematic review

RL Daly, F Bunn, C Goodman - BMJ open, 2018 - bmjopen.bmj.com
Background Shared decision-making is recognised as an important element of person-
centred dementia care. Objectives The aim of this review was to explore how people living …

Tailoring and evaluating an intervention to improve shared decision-making among seniors with dementia, their caregivers, and healthcare providers: study protocol …

AMC Giguere, MA Lawani, É Fortier-Brochu… - Trials, 2018 - Springer
Background The increasing prevalence of Alzheimer's disease and other forms of dementia
raises new challenges to ensure that healthcare decisions are informed by research …