Background: Public involvement is increasingly considered a prerequisite for high-quality
research. However, involvement in palliative care is impeded by limited evidence on the …

Background: Support and evidence for patient, unpaid caregiver and public involvement in
research (user involvement) are growing. Consensus on how best to involve users in …

Background: Patient/carer involvement in palliative care research has been reported as
complex, difficult and less advanced compared to other areas of health and social care …

Background Research is essential for gathering evidence to inform best practice and clinical
decision making, for developing and testing new treatments and services in palliative and …

Aims and objectives The involvement of patients in the design and conduct of research is
increasingly promoted by policy and research bodies. The experiences of individuals who …

Background and objective Public involvement in palliative care is challenging and difficult,
because people in need of palliative care are often not capable of speaking up for …

Patient and public involvement and engagement (PPIE) is an increasingly important
component of research conduct to enhance processes and potential for impact, yet is rarely …

Plain English summary Patient and public involvement (PPI) is increasingly recognised as
important in research. Most PPI takes place face-to-face, but this can be difficult for people …

The importance of user involvement in the organisation and delivery of health services and
the conduct of research has increased over recent decades. Involving people at the end of …

Context Despite international guidelines emphasizing consumer-directed care and
autonomous decisions in research participation, there is a common myth that research can …