What do patients and parents say about parents' ability to choose early genital surgery for girls with congenital adrenal hyperplasia?

KM Szymanski, LH Braga, B Whittam… - The Journal of …, 2021 - auajournals.org
Purpose: We assessed opinions of females with congenital adrenal hyperplasia and their
parents about the parent's ability to choose early genital surgery for these patients. Materials …

What about my daughter's future? Parental concerns when considering female genital restoration surgery in girls with congenital adrenal hyperplasia

KM Szymanski, B Whittam, M Kaefer, H Frady… - Journal of Pediatric …, 2018 - Elsevier
Purpose The parental decision-making process regarding female genital restoration surgery
(FGRS) for girls with congenital adrenal hyperplasia (CAH) is controversial and poorly …

Parental decisional regret and views about optimal timing of female genital restoration surgery in congenital adrenal hyperplasia

KM Szymanski, B Whittam, M Kaefer, H Frady… - Journal of Pediatric …, 2018 - Elsevier
Purpose The role of female genital restoration surgery (FGRS) in girls with congenital
adrenal hyperplasia (CAH) is controversial, with no long-term parent-reported outcomes …

[PDF][PDF] The micro ethics of informed consent for early feminizing surgery in congenital adrenal hyperplasia

KB Dalke, AB Baratz - J Pediatr Ethics, 2021 - researchgate.net
Early surgery for genital difference in 46, XX congenital adrenal hyperplasia (CAH) is highly
controversial, with contested evidence of benefits and risks. While professional urological …

[HTML][HTML] Long-Term Results of Surgical Treatment and Patient-Reported Outcomes in Congenital Adrenal Hyperplasia—A Multicenter European Registry Study

S Krege, H Falhammar, H Lax, R Roehle… - Journal of Clinical …, 2022 - mdpi.com
Representatives for congenital adrenal hyperplasia (CAH) continue to desire early
feminizing surgery in girls with 46, XX-CAH. The aim of this analysis, which included 174 46 …

Why do parents recommend clitoral surgery? Parental perception of the necessity, benefit, and cost of early childhood clitoral surgery for congenital adrenal …

J Alderson, M Skae, EC Crowne - International Journal of Impotence …, 2023 - nature.com
Historically, medical management of Congenital Adrenal Hyperplasia (CAH) in girls typically
involved feminising surgery, which meant reducing the size and/or visibility of the enlarged …

Congenital adrenal hyperplasia: current surgical management at academic medical centers in the United States

RM Sturm, B Durbin-Johnson, EA Kurzrock - The journal of Urology, 2015 - Elsevier
Purpose Controversy exists on the necessity for and timing of genitoplasty in girls with
congenital adrenal hyperplasia. Our knowledge of surgical preferences is limited to …

[HTML][HTML] Surgical practice in girls with congenital adrenal hyperplasia: an international registry study

D Hebenstreit, SF Ahmed, N Krone, C Krall… - Sexual …, 2021 - karger.com
In this article international trends in surgical practice in girls with congenital adrenal
hyperplasia (CAH) are evaluated. All cases that had been classified in the I-CAH/I-DSD …

Beyond changing diapers: stress and decision-making among parents of girls with congenital adrenal hyperplasia seeking consultation about feminizing genital …

KM Szymanski, AK Salama, B Whittam, H Frady… - Journal of pediatric …, 2019 - Elsevier
Summary Introduction/Background The impact of having a child with atypical genitalia due to
a life-threating chronic medical condition like congenital adrenal hyperplasia (CAH) is poorly …

Characteristics of female genital restoration surgery for congenital adrenal hyperplasia using a large-scale administrative database

JD Roth, JT Casey, BM Whittam, WE Bennett Jr… - Urology, 2018 - Elsevier
Objective To analyze nationwide information on the timing of surgical procedures, cost of
surgery, hospital length of stay following surgery, and surgical complications of female …