OP0284-PARE IPARE–GLOBAL COLLABORATION OF PATIENT ORGANISATIONS FOR THE BENEFIT OF RMD PATIENTS

D Wiek - 2023 - ard.bmj.com
Background Rheumatic and musculoskeletal diseases (RMDs) are a burden for individuals
and a challenge to healthcare systems. Comparing the current and the future number of …

SP0219 Patient involvement in research: Flemish training of 18 patient research partners

NP Caeyers - Annals of the Rheumatic Diseases, 2014 - ard.bmj.com
Introduction More and more, the expertise of patients is used to improve the care for people
with RMD9s. But also in scientific research, patients can contribute in a most valuable way …

OP0323-PARE “CELEBRATING THE 50TH ANNIVERSARY OF OUR ORGANISATION IN TIMES OF PANDEMIC: HOW WE USED DIGITAL TOOLS TO OVERCOME …

C Elling-Audersch - 2021 - ard.bmj.com
Background: The German League against Arthritis (DRL) with about 300.000 members
wanted to celebrate its 50 th anniversary in 2020. The original idea to perform a large jubilee …

OP0283-pare hellenic league's against rheumatism's school of health education

K Antonopoulou, A Pappa, D Kouvelas, N Malliou… - 2023 - ard.bmj.com
Background The more time healthcare professionals spend with patients the better the
health outcomes become. Therefore, education seems to play a crucial role for the quality of …

OP0310-PARE AN APP FOR VOLUNTEERS IN DENMARK

J Lange - 2022 - ard.bmj.com
Background The Danish Rheumatism Association wanted to improve its communication with
and between its volunteers. We had an existing system that worked like a database of …

AB0819-HPR Is the rhematic patient ready to accept a more specialised health management offered by his nurse?

DM Vasile, C Ioan, F Berghea, M Iacob… - Annals of the …, 2013 - ard.bmj.com
Background The role of the rheumatology nurse varies from country to country but what all
countries have in common is the ascendant trend of nurse's responsibilities in the …

SP0083 Gaps in patient treatment–what patient organisations can do?

K Koutsogianni - 2018 - ard.bmj.com
Background Access to healthcare is a basic human right and one of the fundamental
principles of European health systems, together with safety, quality, and equity …

POS0063-PARE PIONEERING HEALTH CENTER FOR RMD PATIENTS BY HELLENIC LEAGUE AGAINST RHEUMATISM (KAVALA BRUNCH)

T Makidou, G Foteinopoulos, A Lygera… - 2023 - ard.bmj.com
Background It is common ground, especially in rural and semi-rural areas, that Rheumatic
Diseases (RD) patients are, usually, treated by the health and social care system as …

OP0286-PARE UNMET NEEDS IN RESEARCH, HOW PATIENTS CAN COLLABORATE: THE EXAMPLE OF NECESSITY

C Bouillot, KM Hammitt, AH Lindland, M Oosterbaan… - 2023 - ard.bmj.com
Background NeceSSity stands for “New Clinical Endpoints in primary Sjögren's Syndrome:
an Interventional Trial based on stratifYing patients”. International consortium involving 25 …

OP0202-PARE NRAS New2RA RIGHT START SERVICE FOR PEOPLE RECENTLY DIAGNOSED WITH RA

A Bosworth, C Jacklin - 2022 - ard.bmj.com
Background The National Rheumatoid Arthritis Society (NRAS) follows best practice,
evidence-based standards in all we do. Huge strides have been made in the diagnosis and …