People who pursue unproven therapies are often portrayed as 'desperate'individuals duped
by medical racketeers peddling 'false hope'. These patients, in contrast, present themselves …

In their thoughtful criticism of the conclusion by a joint panel of the Canadian Institutes of
Health Research and the Multiple Sclerosis (MS) Society of Canada concerning Dr. Paolo …

Introduction: Listening to patients' voices is increasingly being recognized as an important
factor for continuous improvement in health care. Integrating patients' stories about their …

New more powerful therapies for the treatment of multiple sclerosis may also confer a
potential for unprecedented life-endangering side effects. How does a physician respond to …

Background People with multiple sclerosis (MS) have varied experiences and approaches
to self‐management. This review aimed to explore the experiences of people with MS, and …

Background Co-creation allows to develop tailored interventions in chronicity and to
increase patients' engagement. Considering the interacting nature of physical …

Purpose This article examines how issues of control, certainty, and uncertainty are
experienced and managed in everyday life with multiple sclerosis (MS) and explores the …

Multiple sclerosis (MS) is a chronic debilitating disease that has an uncertain course.
Although uncertainty is a universal experience in chronic illness, uncertainty in MS is …

From the age of Enlightenment onwards, philosophical thinking has become increasingly
influenced by empiricism: observations lead to theories, but experiments are needed to put …

The sharing of experiences between patients has become increasingly privileged as a
source of knowledge and support in contemporary healthcare. Despite this, relatively little is …