Using patient-reported outcomes and PROMIS in research and clinical applications: experiences from the PCORI pilot projects

CO Bingham, SJ Bartlett, PA Merkel, TJ Mielenz… - Quality of Life …, 2016 - Springer
Purpose The field of patient-centered outcomes research (PCOR) continues to develop.
Patient-reported outcomes and, in particular the Patient-Reported Outcomes Measurement …

Beyond methods to applied research: Realizing the vision of PROMIS®.

AW Smith, RE Jensen - Health Psychology, 2019 - psycnet.apa.org
Patients' perspectives about their health are critical to improving health outcomes. Patient
reported outcomes (PRO) are emerging as a standard way to capture patient perspectives in …

Patient and public involvement in patient-reported outcome measures: evolution not revolution

S Staniszewska, KL Haywood, J Brett… - The Patient-Patient …, 2012 - Springer
This paper considers the potential for collaborative patient and public involvement in the
development, application, evaluation, and interpretation of patient-reported outcome …

ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research

BB Reeve, KW Wyrwich, AW Wu, G Velikova… - Quality of Life …, 2013 - Springer
Purpose An essential aspect of patient-centered outcomes research (PCOR) and
comparative effectiveness research (CER) is the integration of patient perspectives and …

Perceived benefits and limitations of using patient-reported outcome measures in clinical practice with individual patients: a systematic review of qualitative studies

R Campbell, A Ju, MT King, C Rutherford - Quality of Life Research, 2021 - Springer
Purpose Patient-reported outcome measures (PROMs) are increasingly used in clinical
settings to inform individual patient care. In-depth understanding of end-users' experiences …

The National Institutes of Health patient-reported outcomes measurement information system (PROMIS): a view from the UK

JP Evans, A Smith, C Gibbons, J Alonso… - Patient related …, 2018 - Taylor & Francis
The interest in patient-reported outcome measures (PROMs) continues to increase as
recognition of their potential utility rises in an effort to make health systems more patient …

Patient‐reported outcome measures (PROMs): a review of generic and condition‐specific measures and a discussion of trends and issues

K Churruca, C Pomare, LA Ellis, JC Long… - Health …, 2021 - Wiley Online Library
Background Patient‐reported outcome measures (PROMs) are questionnaires that collect
health outcomes directly from the people who experience them. This review critically …

[PDF][PDF] User's guide to implementing patient-reported outcomes assessment in clinical practice

N Aaronson, A Choucair, T Elliott… - … Society for Quality Life …, 2011 - academia.edu
We hope that a wide range of practice types will find this User's Guide helpful. The field of
assessing PROs in clinical practice is continuing to develop and evolve, and the web …

Seeking what matters: patients as research partners

M Mayer - The Patient-Patient-Centered Outcomes Research, 2012 - Springer
In their excellent and timely article 'Patient and public involvement in patient-reported
outcome measures: evolution not revolution,'[1] Sophie Staniszewska and colleagues make …

A method to create a standardized generic and condition-specific patient-reported outcome measure for patient care and healthcare improvement

KE Schifferdecker, SE Yount, K Kaiser… - Quality of Life …, 2018 - Springer
Purpose Patient-reported outcome measures (PROMs), which are generic or condition-
specific, are used for a number of reasons, including clinical care, clinical trials, and in …