The micropolitics of responsibility vis‐à‐vis autonomy: parental accounts of childhood genetic testing and (non) disclosure
M Arribas‐Ayllon, S Sarangi… - Sociology of health & …, 2008 - Wiley Online Library
Genetic testing and (non) disclosure of genetic information present ethical and moral
dilemmas for the management of parental responsibility vis‐à‐vis the child's autonomy …
dilemmas for the management of parental responsibility vis‐à‐vis the child's autonomy …
Professional ambivalence: accounts of ethical practice in childhood genetic testing
M Arribas-Ayllon, S Sarangi, A Clarke - Journal of genetic counseling, 2009 - Springer
Childhood genetic testing raises complex ethical and moral dilemmas for both families and
professionals. In the family sphere, the role of communication is a key aspect in the …
professionals. In the family sphere, the role of communication is a key aspect in the …
The practical ethics of genetic responsibility: Non-disclosure and the autonomy of affect
M Arribas-Ayllon, K Featherstone, P Atkinson - Social Theory & Health, 2011 - Springer
Some have argued that advances in molecular genetics will lead to the geneticisation of
identity and the subsequent reduction of the human subject to their genetic complement. In …
identity and the subsequent reduction of the human subject to their genetic complement. In …
Experiences of genetic risk: disclosure and the gendering of responsibility
L D'Agincourt‐Canning - Bioethics, 2001 - Wiley Online Library
The question of 'who owns genetic information 'is increasingly a focus of ethical inquiry.
Applied to predictive testing, several recent critiques suggest that persons with a genetic …
Applied to predictive testing, several recent critiques suggest that persons with a genetic …
Constructing an account by contrast in counselling for childhood genetic testing
S Sarangi, A Clarke - Social science & medicine, 2002 - Elsevier
Genetic counselling sessions are rich and complex sites of accounting practices for decision-
making in which clinicians are meant to facilitate rather than control the decisions made by …
making in which clinicians are meant to facilitate rather than control the decisions made by …
Genetic testing for hereditary disease: attending to relational responsibility
MM Burgess… - The Journal of Clinical …, 2001 - journals.uchicago.edu
Proponents of genetic testing for hereditary disease have advanced this technology in the
hopes that it will offer persons from families at risk of hereditary disease new choices for …
hopes that it will offer persons from families at risk of hereditary disease new choices for …
Diversity and uniformity in genetic responsibility: moral attitudes of patients, relatives and lay people in Germany and Israel
AE Raz, S Schicktanz - Medicine, Health Care and Philosophy, 2009 - Springer
The professional and institutional responsibility for handling genetic knowledge is well
discussed; less attention has been paid to how lay people and particularly people who are …
discussed; less attention has been paid to how lay people and particularly people who are …
Managing self-responsibility through other-oriented blame: Family accounts of genetic testing
M Arribas-Ayllon, S Sarangi, A Clarke - Social Science & Medicine, 2008 - Elsevier
'Genetic responsibility'has emerged as a key notion for understanding how genetic risk
reshapes patterns of choice, identification and obligation within families. Where previous …
reshapes patterns of choice, identification and obligation within families. Where previous …
[图书][B] Debating human genetics: Contemporary issues in public policy and ethics
A Plows - 2010 - taylorfrancis.com
Debating Human Genetics is based on ethnographic research focusing primarily on the UK
publics who are debating and engaging with human genetics, and related bio and techno …
publics who are debating and engaging with human genetics, and related bio and techno …
Genetic subjectivity in situ: A rhetorical reading of genetic determinism and genetic opportunity in the biosocial community of FORCE
K Pender - Rhetoric and Public Affairs, 2012 - scholarlypublishingcollective.org
Abstract In The Politics of Life Itself, Nikolas Rose argues that contemporary genetic
medicine has given rise to the" genetically at-risk subject," which is distinguished from other …
medicine has given rise to the" genetically at-risk subject," which is distinguished from other …
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