[PDF][PDF] The process of end-of-life decisions: regarding people with intellectual disabilities

AMA Wagemans - 2013 - cris.maastrichtuniversity.nl
Background End-of-life decisions are important for all people, as is illustrated by the
increasing numbers of such decisions in Western countries. End-of-life decisions are …

People with intellectual disability: what do we know about adulthood and life expectancy?

AMW Coppus - Developmental disabilities research reviews, 2013 - Wiley Online Library
Increases in the life expectancy of people with Intellectual Disability have followed similar
trends to those found in the general population. With the exception of people with severe …

The experiences of staff who support people with intellectual disability on issues about death, dying and bereavement: A metasynthesis

AJ Lord, S Field, IC Smith - Journal of Applied Research in …, 2017 - Wiley Online Library
Background Historically, people with intellectual disabilities have tended to be excluded
from knowing about death, dying and bereavement. Staff in intellectual disability services …

Critical reflections on end-of-life care for people with intellectual disabilities: a single case study approach

S Read, D Cartlidge - International Journal of Palliative …, 2012 - magonlinelibrary.com
People with intellectual disabilities (ID) are enjoying increasing longevity, but are
simultaneously having to cope with the additional health problems associated with ageing …

Qualitative methodological approaches involving participants with intellectual disabilities: Scoping review of literature exploring death and dying

MA Diaz, JE Bickenbach, C Sabariego… - Journal of Applied …, 2024 - Wiley Online Library
Background A paucity of qualitative research on sensitive topics that focuses on participants
with intellectual disabilities leaves their views unexplored. This scoping review mainly aimed …

End-of-life care policies for people with an intellectual disability: Issues and strategies

AL Botsford, A King - Journal of Disability Policy Studies, 2005 - journals.sagepub.com
It is estimated that more than 650,000 individuals with intellectual disabilities live with
caregivers who are 60 or more years old. As they age, they face end-of-life issues in relation …

'I hope he dies before me': unravelling the debates about ageing and people with intellectual disability

C Bigby - Routledge handbook of disability studies, 2013 - taylorfrancis.com
Improvements to health care and the impact of deinstitutionalization have significantly
increased the life expectancy of people with intellectual disability, few of whom survived past …

Intellectual disabilities and decision making at end of life: A literature review

A Kirkendall, K Linton, S Farris - Journal of Applied Research in …, 2017 - Wiley Online Library
Background Individuals with an intellectual disability are vulnerable to having end‐of‐life
decisions made for them merely due to the presence of a disability. As a result, decisions …

End-of-life care for children and adults with intellectual and developmental disabilities

SL Friedman, DT Helm - 2010 - philpapers.org
End-of-life care is the only major reference to systematically explore the unique medical,
social, legal, political, and ethical issues to consider while providing care to adults and …

Aging in individuals with intellectual and developmental disabilities.

T Heller, L van Heumen - 2021 - psycnet.apa.org
Population aging is occurring throughout the world. The number of older people (60 years of
age or older) worldwide is expected to double by 2050, when it is projected to reach nearly …