Perceived barriers and facilitators to good end of life care: Focusing on people with intellectual disabilities

MA Diaz, FC Angus… - Journal of Applied …, 2024 - Wiley Online Library
Background People with intellectual disabilities are often left out of research on important
topics. This exploratory study investigated their views on barriers and facilitators to …

End‐of‐life decision‐making for people with intellectual disability from the perspective of nurses

AMA Wagemans… - Journal of Policy and …, 2015 - Wiley Online Library
Little is known about the involvement of nurses in the process of making end‐of‐life
decisions for people with intellectual disability (ID). The aim of this study was to clarify this …

End‐of‐life care research on people with intellectual disabilities: Challenges for proactive inclusion in an Irish context

K Cithambaram, M Duffy… - British Journal of Learning …, 2019 - Wiley Online Library
Accessible Summary People with intellectual disabilities are living longer than ever before.
Although people with intellectual disabilities are living longer, they still suffer from many …

Families perceptions of the grieving process and concept of death in individuals with intellectual disabilities

J McEvoy, E Smith - The British Journal of Development Disabilities, 2005 - Taylor & Francis
Nowadays people with intellectual disabilities are more likely to live at home (Mulvany and
Barron, 2003) and because of improved life expectancy (Patja, et al., 2000) are more likely …

Learning about dying, death, and end-of-life planning: Current issues informing future actions

M Wiese, RJ Stancliffe, S Read, G Jeltes… - Journal of intellectual …, 2015 - Taylor & Francis
1Centre for Disability Research and Policy, The University of Sydney, Sydney, Australia,
2School of Nursing and Midwifery, Faculty of Health, Keele University, Staffordshire, UK …

Gender and the premature deaths of people with intellectual disabilities: an international expert consultation

J Robertson, P Heslop, E Lauer… - Journal of Policy and …, 2021 - Wiley Online Library
People with intellectual disabilities die at much younger ages than the general population,
with this gap in life expectancy greater for females than males. This study aimed to seek the …

Ageing, end-of-life care, and the National Disability Insurance Scheme: what can we learn from overseas?

S Wark - Journal of Intellectual and Developmental Disability, 2015 - Taylor & Francis
The author of this conceptual article was awarded a Churchill Fellowship to travel to the
United States, Ireland, and United Kingdom to meet with researchers, practitioners, and …

'If and when?': The beliefs and experiences of community living staff in supporting older people with intellectual disability to know about dying

M Wiese, A Dew, RJ Stancliffe… - Journal of …, 2013 - Wiley Online Library
Background The aim of this study was to explore the way in which community living staff
engaged with people with intellectual disability (ID) about dying and death. Method Guided …

End-of-life care and people with intellectual disabilities: A multi-media educational resource

D McLaughlin, O Barr, S McIlfatrick… - Journal of Intellectual …, 2012 - pure.qub.ac.uk
Aim This study aimed to develop and evaluate a multi-media educational resource in
palliative and end-of-life care for specialist palliative care and intellectual disability services …

[图书][B] The road ahead: Transition to adult life for persons with disabilities

D Hunter, K Storey - 2013 - books.google.com
Successful transition from school to adult life has always been difficult for people with
disabilities, especially in the area of employment. The vast majority of people with …