Researchers, patients, and other stakeholders' perspectives on challenges to and strategies for engagement

A Heckert, LP Forsythe, KL Carman, L Frank… - Research Involvement …, 2020 - Springer
Background There is growing interest in patient and stakeholder engagement in research,
yet limited evidence about effective methods. Since 2012, the Patient-Centered Outcomes …

Methods and impact of engagement in research, from theory to practice and back again: early findings from the Patient-Centered Outcomes Research Institute

L Forsythe, A Heckert, MK Margolis, S Schrandt… - Quality of Life …, 2018 - Springer
Purpose Since 2012, PCORI has been funding patient-centered comparative effectiveness
research with a requirement for engaging patients and other stakeholders in the research, a …

The PCORI engagement rubric: promising practices for partnering in research

S Sheridan, S Schrandt, L Forsythe… - The Annals of Family …, 2017 - Annals Family Med
PURPOSE Engaging patients, caregivers, and other health care stakeholders as partners in
planning, conducting, and disseminating research is a promising way to improve clinical …

Patient engagement in research: early findings from the Patient-Centered Outcomes Research Institute

LP Forsythe, KL Carman, V Szydlowski, L Fayish… - Health …, 2019 - healthaffairs.org
Charged with ensuring that research produces useful evidence to inform health decisions,
the Patient-Centered Outcomes Research Institute (PCORI) requires investigators to engage …

Patient and stakeholder engagement in the PCORI pilot projects: description and lessons learned

LP Forsythe, LE Ellis, L Edmundson… - Journal of general …, 2016 - Springer
ABSTRACT BACKGROUND Patients and healthcare stakeholders are increasingly
becoming engaged in the planning and conduct of biomedical research. However, limited …

[HTML][HTML] Measuring the impact of patient-engaged research: how a methods workshop identified critical outcomes of research engagement

EC Dillon, L Tuzzio, S Madrid, H Olden… - Journal of Patient …, 2017 - ncbi.nlm.nih.gov
Purpose While strategies to evaluate the influence of engaging patient partners in research,
such as the Patient-Centered Outcomes Research Institute (PCORI) WE-ENACT surveys …

Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute

L Frank, L Forsythe, L Ellis, S Schrandt… - Quality of Life …, 2015 - Springer
Purpose To provide an overview of PCORI's approach to engagement in research. Methods
The Patient-Centered Outcomes Research Institute (PCORI) was established in 2010 to fund …

Patient engagement in a national research network: barriers, facilitators, and impacts

M Gonzalez, T Ogourtsova, A Zerbo, C Lalonde… - Research Involvement …, 2023 - Springer
Background Little is known about patient engagement in the context of large teams or
networks. Quantitative data from a larger sample of CHILD-BRIGHT Network members …

Understanding the influence and impact of stakeholder engagement in patient-centered outcomes research: a qualitative study

M Maurer, R Mangrum, T Hilliard-Boone… - Journal of general …, 2022 - Springer
Background Engaging patients and other stakeholders as partners in research offers
promise in improving the relevance and usefulness of research findings. Objective To …

Evaluating patient and stakeholder engagement in research: moving from theory to practice

L Esmail, E Moore, A Rein - Journal of comparative …, 2015 - becarispublishing.com
Despite the growing demand for research that engages stakeholders, there is limited
evidence in the literature to demonstrate its value–or return on investment. This gap …