“I know how to advocate”: Parents' experiences in advocating for children and youth diagnosed with autism spectrum disorder

J Smith-Young, R Chafe, R Audas… - Health services …, 2022 - journals.sagepub.com
Background: Parental advocacy is a dynamic process that changes depending on the
circumstances and needs of the child and parent. Communication deficits related to an …

Parents' voices:'why and how we advocate'. A meta‐synthesis of parents' experiences of advocating for their child with autism spectrum disorder

K Boshoff, D Gibbs, RL Phillips… - Child: care, health and …, 2016 - Wiley Online Library
Parenting a child with autism spectrum disorder (ASD) can be stressful, and accessing
services can add to this stress. Self‐efficacy, agency and advocacy are important for parents …

Parents' voices:“Our process of advocating for our child with autism.” A meta‐synthesis of parents' perspectives

K Boshoff, D Gibbs, RL Phillips… - Child: Care, Health …, 2018 - Wiley Online Library
Background Advocacy has been described by parents of children with autism as an
important coping strategy, enabling them to move forward by redirecting emotions into …

A meta‐synthesis of how parents of children with autism describe their experience of advocating for their children during the process of diagnosis

K Boshoff, D Gibbs, RL Phillips… - Health & Social Care …, 2019 - Wiley Online Library
The diagnostic process for children with autism can be complex for parents to navigate as
they advocate for their child in order to obtain answers to their concerns, and receive the …

Narratives on the factors that influence family decision making for young children with autism spectrum disorder

P Dinora, M Bogenschutz - Journal of Early Intervention, 2018 - journals.sagepub.com
Families of children with autism spectrum disorder (ASD) play a central role in selecting
interventions for their children. Despite the importance of understanding the factors that …

Training parents of youth with autism spectrum disorder to advocate for adult disability services: Results from a pilot randomized controlled trial

JL Taylor, RM Hodapp, MM Burke… - Journal of autism and …, 2017 - Springer
This study presents findings from a pilot randomized controlled trial, testing a 12-week
intervention to train parents of youth with autism spectrum disorder (ASD) to advocate for …

Coming to understand the child has autism: A process illustrating parents' evolving readiness for engaging in care

SJ Gentles, DB Nicholas, SM Jack, KA McKibbon… - …, 2020 - journals.sagepub.com
We report results from a large qualitative study regarding the process of parents coming to
understand the child has autism starting from the time of initial developmental concerns …

Parents' experiences of caring for a child with autism spectrum disorder

AM DePape, S Lindsay - Qualitative health research, 2015 - journals.sagepub.com
Autism spectrum disorder (ASD) is a developmental disorder involving abnormal
communication, repetitive and restrictive interests, and impaired social functioning. ASD can …

“Managing the wait”: Parents' experiences in accessing diagnostic and treatment services for children and adolescents diagnosed with autism spectrum disorder

J Smith-Young, R Chafe, R Audas - Health services insights, 2020 - journals.sagepub.com
Background: Parents of children and adolescents diagnosed with autism spectrum disorder
(ASD) report delays in accessing timely diagnostic and treatment services for their children …

The role of parental advocacy in addressing service disparities for transition-aged youth on the autism spectrum

CE Lee, MM Burke, LS DaWalt, C Li, JL Taylor - Autism, 2022 - journals.sagepub.com
Youth with autism spectrum disorder (ASD) face challenges accessing needed services as
they transition to adulthood. Correlates of service access identified in the literature—such as …