In this chapter we aim to outline some of the ways in which the debate over the right to know
and the right not to know has moved on since this book was first published in 1997. The …

The privacy concerns discussed in the 1990s in relation to the New Genetics failed to
anticipate the relevant issues for individuals, families, geneticists and society. Consumers …

The contribution ofthis chapter is two-fold. First, it argues for conceptual clarity in the debates
about the right to know and the right not to know by suggesting that the most appropriate …

Privacy is an unwieldy concept that has eluded an essentialised definition despite its
centrality and importance in the body of bioethics. The compilation presented in this volume …

Genetic privacy and confidentiality have both intrinsic and consequential value. Although
general agreement exists about the need to protect privacy and confidentiality in the …

The following sections are included: INTRODUCTION SHOULD THERE BE A SPECIAL
CLASS OF PRIVACY NAMED “GENETIC PRIVACY”? A THEORY OF INFORMATION …

Recently, genetics and genomics have become consumer products, moving beyond the
research lab and outside the clinic into the daily life of modern citizens. Direct-to-consumer …

The phenomenon of the New Genetics raises complex social problems, particularly those of
privacy. This book offers ethical and legal perspectives on the questions of a right to know …

I welcome the opportunity to respond to the article by Dr Canellopoulou Bottis which
discusses my work'In Defence of Ignorance: Genetic Information and the Right Not to Know' …

At the heart of the right to know and the right not to know debate is the right to choose, which
is predicated on the right to information, and other relevant resources, to enable a choice to …