The idea of a right to genetic privacy

T Spaak - Juridisk tidskrift, 2008 - papers.ssrn.com
The question I want to consider in this article is whether the idea of a right to genetic privacy
can be a useful analytical tool in the analysis of moral or legal problems that concern genetic …

Questioning the limits of genomic privacy

BM Knoppers, ES Dove, JE Litton, JJ Nietfeld - The American Journal of …, 2012 - cell.com
To the Editor: Recently, Im et al. 1 presented a method that can infer an individual's
participation in a study when regression coefficients from quantitative phenotypes are …

Democracy and genetic privacy: The value of bodily integrity

L Beckman - Medicine, Health Care and Philosophy, 2005 - Springer
The right to genetic privacy is presently being incorporated in legal systems all over the
world. It remains largely unclear however what interests and values this right serves to …

Genetic Information Access, a Legal Perspective: A Duty to Know or a Right Not to Know, and a Duty or Option to Warn?

T Lemmens, L Luther, M Hoy - eLS, 2008 - Wiley Online Library
It is often argued that concern with basic personal privacy suggests that individuals should
be allowed to decide in isolation whether to obtain genetic information through testing and …

The genetic privacy act: A proposal for national legislation

P Roche, LH Glantz, GJ Annas - Jurimetrics, 1996 - JSTOR
THE GENETIC PRIVACY ACT: A PROPOSAL FOR NATIONAL LEGISLATION Page 1 THE
GENETIC PRIVACY ACT: A PROPOSAL FOR NATIONAL LEGISLATION Patricia (Winnie) …

Comparative architecture of genetic privacy

KR Pierce - Ind. Int'l & Comp. L. Rev., 2009 - HeinOnline
" Perhaps the most striking thing about the right to privacy is that nobody seems to have any
very clear idea what it is."'Despite that hurdle, or perhaps because of it, privacy has received …

Using a genetic test result in the care of family members: how does the duty of confidentiality apply?

M Parker, A Lucassen - European Journal of Human Genetics, 2018 - nature.com
The use of genetic and genomic testing is becoming more widespread in healthcare and
more inherited explanations for family history of diseases or conditions are being uncovered …

[PDF][PDF] Patient rights, risk, and responsibilities in the genetic era–a right to know, a right not to know, or a duty to know?

J Domaradzki - Annals of Agricultural and Environmental …, 2015 - bibliotekanauki.pl
Introduction and objective. As genetics tests ordered by physicians have implications not
only for patients but also their relatives, they create a bioethical dilemma for both clinicians …

Challenging medical-legal norms: the role of autonomy, confidentiality, and privacy in protecting individual and familial group rights in genetic information

GT Laurie - Journal of Legal Medicine, 2001 - Taylor & Francis
Much ink has been spilled discussing the ramifi cations of genetic advances for individuals,
communities, and society at large. A central concern has been the problem of regulating …

Privacy and genetic information

HA Lubs - Biomedical ethics and the law, 1979 - Springer
Invasion of privacy is decried on the streets and discussed in academic halls. The
preservation of privacy is almost a holy cause in the United States and, indeed, it is …