I welcome the opportunity to respond to the article by Dr Canellopoulou Bottis which
discusses my work'In Defence of Ignorance: Genetic Information and the Right Not to Know' …

This article considers two concepts which have for a long time received short shrift in the
field of medical law and ethics: ignorance and privacy. By'ignorance'is not meant wilful …

In June 1999, the European Journal of Health Law published an article, by Graeme Laurie,
on the right of the relatives of a patient not to know genetic information not only concerning …

In this chapter we aim to outline some of the ways in which the debate over the right to know
and the right not to know has moved on since this book was first published in 1997. The …

One of the major challenges posed by the advances in genetic testing is how best to
regulate the acquisition and control of private genetic information. The fact that reports are …

The contribution ofthis chapter is two-fold. First, it argues for conceptual clarity in the debates
about the right to know and the right not to know by suggesting that the most appropriate …

The emerging international biomedical law tends to recognise the right not to know one's
genetic status. However, the basis and conditions for the exercise of this right remain …

Genetic privacy and confidentiality have both intrinsic and consequential value. Although
general agreement exists about the need to protect privacy and confidentiality in the …

The phenomenon of the New Genetics raises complex social problems, particularly those of
privacy. This book offers ethical and legal perspectives on the questions of a right to know …

In this paper we question whether the concept of" genetic privacy" is a contradiction in terms.
And, if so, whether the implications of such a conclusion, inevitably impact on how society …