Outcomes 1. Describe who, how, and why pediatric patients are referred to inpatient
pediatric palliative care services 2. Describe inpatient pediatric palliative care service …

Outcomes 1. Describe the importance of outpatient pediatric palliative care (PPC) and
current literature 2. Describe the prevalence and demographics of outpatient PPC services …

Outcomes 1. Describe the importance of outpatient PPC and current literature. 2. Describe
the prevalence and clinic structure and workflow of OPPC services at freestanding children's …

BACKGROUND AND OBJECTIVES Quality benchmarking in pediatric palliative care (PPC)
helps identify gaps in care and guides quality improvement. Our study objective was to …

Context Inpatient pediatric palliative care (PPC) has grown substantially over the past 20
years; however, PPC in the outpatient setting remains underdeveloped. Outpatient PPC …

Outcomes 1. Describe the spectrum of provider-reported pediatric palliative care domains
discussed and managed during pediatric palliative care-oncology clinic visits and how these …

Methods In 2019, the National Palliative Care Registry™ collected pediatric-specific data to
help address these gaps; 54 inpatient PPC programs representing 29 states and DC …

Outcomes 1. Describe the patient population, clinical and treatment intensity, and end-of-life
outcomes of children served in a new embedded pediatric palliative oncology clinic 2 …

Pediatric palliative care (PPC) programs vary widely in structure, staffing, funding, and
patient census, resulting in inconsistency in service provision. Improving the quality of …

METHODS The National Palliative Care Registry collects annualized data on palliative care
programs' structures, processes, and staffing. Using data from the 2018 registry survey, we …