Bridging the divide between genomic science and indigenous peoples

B Jacobs, J Roffenbender, J Collmann… - Journal of Law …, 2010 - cambridge.org
The new science of genomics endeavors to chart the genomes of individuals around the
world, with the dual goals of understanding the role genetic factors play in human health and …

[PDF][PDF] Genetics and Indigenous communities: ethical issues

EE Kowal - International Encyclopedia of the Social & Behavioral …, 2015 - researchgate.net
Indigenous people stand to benefit from advances in genomic technology, but genetic
research in Indigenous communities has been controversial. This article reviews the ethical …

[HTML][HTML] A comparative analysis of indigenous research guidelines to inform genomic research in indigenous communities

NK Taniguchi, M Taualii, J Maddock - The International Indigenous …, 2012 - ir.lib.uwo.ca
BACKGROUND: Genetic research has potential benefits for improving health, such as
identifying molecular characteristics of a disease, understanding disease prevalence and …

Entwined processes: rescripting consent and strengthening governance in genomics research with indigenous communities

NA Garrison, SR Carroll… - The Journal of Law …, 2020 - journals.sagepub.com
In their paper in this issue, Prictor et al. propose using a dynamic consent approach for
recruiting Indigenous Peoples into genomic studies as it has the potential to “provide for …

[HTML][HTML] A framework for enhancing ethical genomic research with Indigenous communities

KG Claw, MZ Anderson, RL Begay, KS Tsosie… - Nature …, 2018 - nature.com
Integration of genomic technology into healthcare settings establishes new capabilities to
predict disease susceptibility and optimize treatment regimes. Yet, Indigenous peoples …

Indigenous peoples and the morality of the Human Genome Diversity Project.

M Dodson, R Williamson - Journal of Medical Ethics, 1999 - jme.bmj.com
In addition to the aim of mapping and sequencing one human's genome, the Human
Genome Project also intends to characterise the genetic diversity of the world's peoples. The …

On the edge of tomorrow: fitting genomics into public health policy

S Gerard, M Hayes, MA Rothstein - JL Med. & Ethics, 2002 - HeinOnline
The project to map the human genome and the field of genetics in general offer unique
opportunities for not only clinical medicine, but also for public health to address and prevent …

[HTML][HTML] Genomic research in Zambia: confronting the ethics, policy and regulatory frontiers in the 21st Century

P Chanda-Kapata, N Kapata, AN Moraes… - Health research policy …, 2015 - Springer
Genomic research has the potential to increase knowledge in health sciences, but the
process has to ensure the safety, integrity and well-being of research participants. A legal …

Cultural challenges to biotechnology: Native American genetic resources and the concept of cultural harm

R Tsosie - Journal of Law, Medicine & Ethics, 2007 - cambridge.org
Our society currently faces many complex and perplexing issues related to biotechnology,
including the need to define the outer boundaries of genetic research on human beings and …

Genome justice: Genetics and group rights

R Tsosie, JL McGregor - Journal of Law, Medicine & Ethics, 2007 - cambridge.org
The accelerated rate of innovation within bio-technology and increasing importance of
human genetic information has triggered complex and compelling issues for researchers …