Guideline for feedback of individual genetic research findings for genomics research in Africa
A Matimba, S Ali, K Littler, E Madden, P Marshall… - BMJ Global …, 2022 - gh.bmj.com
As human genomics research in Africa continues to generate large amounts of data, ethical
issues arise regarding how actionable genetic information is shared with research …
issues arise regarding how actionable genetic information is shared with research …
Toward an open access genomics database of South Africans: ethical considerations
Genomics research holds the potential to improve healthcare. Yet, a very low percentage of
the genomic data used in genomics research internationally relates to persons of African …
the genomic data used in genomics research internationally relates to persons of African …
[PDF][PDF] The H3Africa Consortium: publication outputs of a pan-African genomics collaboration (2013 to 2020)
Developing a complex collaborative program across multiple African countries,
characterized by a diversity of government models, laws, cultures and norms, resources and …
characterized by a diversity of government models, laws, cultures and norms, resources and …
Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa …
P Tindana, A Yakubu, C Staunton, A Matimba… - BMC Medical …, 2019 - Springer
In the past decade, there has been an increase in genomic research and biobanking
activities in Africa. Research initiatives such as the Human Heredity and Health in Africa …
activities in Africa. Research initiatives such as the Human Heredity and Health in Africa …
Ethical considerations in genomic research in South Africa
J De Vries, NS Munung - South African Medical Journal, 2019 - journals.co.za
The conduct of genomic research in South Africa (SA) raises a number of ethical challenges
that need to be addressed in its design and execution. These include, for example …
that need to be addressed in its design and execution. These include, for example …
ASSAf consensus study on the ethical, legal and social implications of genetics and genomics in South Africa
South Africa is home to one of the most genetically diverse populations in the world, which,
combined with its high disease burden and high-quality infrastructure, makes our country a …
combined with its high disease burden and high-quality infrastructure, makes our country a …
Translational science, DNA commercialization, and informed consent: the need for specific terminology, insights from a review of h3africa projects
P Marshall, CDM Royal, R Chadwick - Public health genomics, 2022 - karger.com
In the past decade, there has been an acceleration in genomic research, its applications,
and its translation into healthcare products and services for the benefit of public health …
and its translation into healthcare products and services for the benefit of public health …
A framework for tiered informed consent for health genomic research in Africa
V Nembaware, K Johnston, AA Diallo, MJ Kotze… - Nature Genetics, 2019 - nature.com
A generic framework for providing participant information and implementing a tiered consent
process for health genomic research in Africa can help to harness global health benefits …
process for health genomic research in Africa can help to harness global health benefits …
[HTML][HTML] The emergence of genomic research in Africa and new frameworks for equity in biomedical research
AR Bentley, S Callier, C Rotimi - Ethnicity & disease, 2019 - ncbi.nlm.nih.gov
Individuals with African ancestry have the greatest genomic diversity in the world, yet they
have been underrepresented in genomic research. To advance our understanding of human …
have been underrepresented in genomic research. To advance our understanding of human …
Considerations of autonomy in guiding decisions around the feedback of individual genetic research results from genomics research: expectations of and preferences …
M Kasule, M Matshaba, E Mwaka… - Global health …, 2022 - cambridge.org
Background. The Human Health and Heredity (H3Africa) Consortium continues to generate
large amounts of genomic data leading to new insights into health and disease among …
large amounts of genomic data leading to new insights into health and disease among …