Guideline for feedback of individual genetic research findings for genomics research in Africa

A Matimba, S Ali, K Littler, E Madden, P Marshall… - BMJ Global …, 2022 - gh.bmj.com
As human genomics research in Africa continues to generate large amounts of data, ethical
issues arise regarding how actionable genetic information is shared with research …

Toward an open access genomics database of South Africans: ethical considerations

A Gooden, D Thaldar - Frontiers in Genetics, 2023 - frontiersin.org
Genomics research holds the potential to improve healthcare. Yet, a very low percentage of
the genomic data used in genomics research internationally relates to persons of African …

[PDF][PDF] The H3Africa Consortium: publication outputs of a pan-African genomics collaboration (2013 to 2020)

A Choudhury, D Sengupta, S Aron… - Africa, the Cradle of …, 2021 - library.oapen.org
Developing a complex collaborative program across multiple African countries,
characterized by a diversity of government models, laws, cultures and norms, resources and …

Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa …

P Tindana, A Yakubu, C Staunton, A Matimba… - BMC Medical …, 2019 - Springer
In the past decade, there has been an increase in genomic research and biobanking
activities in Africa. Research initiatives such as the Human Heredity and Health in Africa …

Ethical considerations in genomic research in South Africa

J De Vries, NS Munung - South African Medical Journal, 2019 - journals.co.za
The conduct of genomic research in South Africa (SA) raises a number of ethical challenges
that need to be addressed in its design and execution. These include, for example …

ASSAf consensus study on the ethical, legal and social implications of genetics and genomics in South Africa

MS Pepper, C Dandara, J De Vries, A Dhai… - South African Journal …, 2018 - scielo.org.za
South Africa is home to one of the most genetically diverse populations in the world, which,
combined with its high disease burden and high-quality infrastructure, makes our country a …

Translational science, DNA commercialization, and informed consent: the need for specific terminology, insights from a review of h3africa projects

P Marshall, CDM Royal, R Chadwick - Public health genomics, 2022 - karger.com
In the past decade, there has been an acceleration in genomic research, its applications,
and its translation into healthcare products and services for the benefit of public health …

A framework for tiered informed consent for health genomic research in Africa

V Nembaware, K Johnston, AA Diallo, MJ Kotze… - Nature Genetics, 2019 - nature.com
A generic framework for providing participant information and implementing a tiered consent
process for health genomic research in Africa can help to harness global health benefits …

[HTML][HTML] The emergence of genomic research in Africa and new frameworks for equity in biomedical research

AR Bentley, S Callier, C Rotimi - Ethnicity & disease, 2019 - ncbi.nlm.nih.gov
Individuals with African ancestry have the greatest genomic diversity in the world, yet they
have been underrepresented in genomic research. To advance our understanding of human …

Considerations of autonomy in guiding decisions around the feedback of individual genetic research results from genomics research: expectations of and preferences …

M Kasule, M Matshaba, E Mwaka… - Global health …, 2022 - cambridge.org
Background. The Human Health and Heredity (H3Africa) Consortium continues to generate
large amounts of genomic data leading to new insights into health and disease among …