Expanding the frame of" voluntariness" in informed consent: structural coercion and the power of social and economic context
JA Fisher - Kennedy Institute of Ethics Journal, 2013 - muse.jhu.edu
This paper introduces the term “structural coercion” to underscore the ways in which broader
social, economic, and political contexts act upon individuals to compel them to enroll as …
social, economic, and political contexts act upon individuals to compel them to enroll as …
[HTML][HTML] Ensuring consent to research is voluntary: How far do we need to go?
S Bull, GC Lindegger - The American Journal of Bioethics, 2011 - Taylor & Francis
One fundamental ethical principle underpinning research ethics is that of respect for
persons. It requires that researchers respect research participants' autonomy, interests, and …
persons. It requires that researchers respect research participants' autonomy, interests, and …
Voluntariness of consent for research: an empirical and conceptual review
RM Nelson, JF Merz - Medical care, 2002 - journals.lww.com
This article explores the vulnerability of research subjects either to undue influence or to
coercion. The authors present a brief review of the requirement for voluntariness in research …
coercion. The authors present a brief review of the requirement for voluntariness in research …
Proposing modesty for informed consent
MM Burgess - Social Science & Medicine, 2007 - Elsevier
The extension of informed consent into social science research has met with considerable
opposition. The history and concept of informed consent, however, is based on a substantive …
opposition. The history and concept of informed consent, however, is based on a substantive …
[HTML][HTML] Relevant information and informed consent in research: in defense of the subjective standard of disclosure
In this article, we seek to contribute to the debate on the requirement of disclosure in the
context of informed consent for research. We defend the subjective standard of disclosure …
context of informed consent for research. We defend the subjective standard of disclosure …
Reframing consent for clinical research: a function-based approach
NW Dickert, N Eyal, SF Goldkind, C Grady… - The American Journal …, 2017 - Taylor & Francis
Although informed consent is important in clinical research, questions persist regarding
when it is necessary, what it requires, and how it should be obtained. The standard view in …
when it is necessary, what it requires, and how it should be obtained. The standard view in …
[HTML][HTML] Researchers' views on, and experiences with, the requirement to obtain informed consent in research involving human participants: a qualitative study
Background Informed consent is often cited as the “cornerstone” of research ethics. Its intent
is that participants enter research voluntarily, with an understanding of what their …
is that participants enter research voluntarily, with an understanding of what their …
Research, informed consent, and the limits of disclosure
TM Williamson - Bioethics, 2001 - Wiley Online Library
According to this paper, respect for informed consent implies that subjects should often be
told a good deal more than ethical guidelines explicitly or implicitly require. Unless subjects …
told a good deal more than ethical guidelines explicitly or implicitly require. Unless subjects …
[图书][B] The limits of consent: a socio-ethical approach to human subject research in medicine
Since its inception as an international requirement to protect patients and healthy volunteers
taking part in medical research, informed consent has become the primary consideration in …
taking part in medical research, informed consent has become the primary consideration in …
“Ethics Ready”? Governing Research Through Informed Consent Procedures
F Caeymaex, C Wenger… - … Journal of Qualitative …, 2023 - journals.sagepub.com
Social Scientists using ethnographic methods are increasingly confronted with ethical
clearance procedures imposed by universities, national authorities, professional …
clearance procedures imposed by universities, national authorities, professional …