Background: Parents of children with CHD face several barriers when trying to access the
services needed to support their child's development. In fact, current developmental follow …

Background Developmental follow-up is central to the timely identification of delays in at-risk
children. Throughout Canada, data are currently lacking on the follow-up of children with …

Background Youth with congenital heart disease (CHD) are at high risk for a range of
developmental impairments that become evident at different times across childhood and …

Background Transitioning from paediatric to adult congenital heart disease (CHD) care is a
high-risk time for being lost to follow-up. Existing CHD transition programmes have not …

Children born today with congenital heart disease (CHD) will most likely live into adulthood
and as such need to transition their care from the paediatric cardiac clinic to the adult …

Aim To identify and map evidence describing components of neurodevelopmental follow‐up
care for children with congenital heart disease (CHD). Method This was a scoping review of …

Each year in the US, an estimated 750 000 youth with special health care needs transition
from adolescence into adulthood. 1 There is thus a growing population of adult survivors of …

Objective A substantial percentage of children with congenital heart disease (CHD) fail to
transfer to adult care, resulting in increased risk of morbidity and mortality. Transition …

Abstract Families of children with congenital heart disease (CHD) cope differently
depending on individual and familial factors beyond the severity of the child's condition …

Objectives To identify parents' preferences for goals and structure of intervention programs
to support the psychosocial needs of families impacted by congenital heart disease (CHD) …