Privacy is an unwieldy concept that has eluded an essentialised definition despite its
centrality and importance in the body of bioethics. The compilation presented in this volume …

Recent advances in technology have significantly improved the accuracy of genetic testing
and analysis, and substantially reduced its cost, resulting in a dramatic increase in the …

Debates surrounding genetic privacy have taken on different forms over the past 30 years.
Taking genetic privacy to mean an interest that individuals, families, or even communities …

To the Editor: Recently, Im et al. 1 presented a method that can infer an individual's
participation in a study when regression coefficients from quantitative phenotypes are …

Massive efforts are underway to accumulate and understand ethnic genetic data. Big
science as well as private industry now are gathering and holding onto greater amounts of …

The dramatic explosion of information brought about by recent advances in genetic research
brings welcome scientific knowledge. Yet this new knowledge also raises complex and …

Genetic Privacy : The Notion of Genetic Privacy Page 1 1 b1483 Genetic Privacy: An
Evaluation of the Ethical and Legal Landscape 1 The Notion of Genetic Privacy Calvin WL Ho …

Advances in full genome sequencing have led to a practical and ethical conflict between
protecting genetic privacy and large-scale genomic research. This chapter concerns the …

In discussions about direct-to-consumer availability of genetic testing, much attention has
been given to identifying the various risks and benefits that individuals might incur. For …

Genetic privacy and confidentiality have both intrinsic and consequential value. Although
general agreement exists about the need to protect privacy and confidentiality in the …