[HTML][HTML] The clinical practice guideline palliative care for children and other strategies to enhance shared decision-making in pediatric palliative care; pediatricians' …

D Dreesens, L Veul, J Westermann, N Wijnands… - BMC pediatrics, 2019 - Springer
Background Because of practice variation and new developments in palliative pediatric
care, the Dutch Association of Pediatrics decided to develop the clinical practice guideline …

Shared decision-making in pediatric palliative care in the Netherlands

EM Michiels, CY Joren, MC Kars, JL Aris… - Current Problems in …, 2024 - Elsevier
Shared decision-making (SDM) is a process in which health care professionals (HCPs)
involve parents and children-when appropriate-to decide together on future treatment …

[HTML][HTML] Palliative care for children: methodology for the development of a national clinical practice guideline

KC van Teunenbroek, LCM Kremer, AAE Verhagen… - BMC Palliative Care, 2023 - Springer
Background Provision of paediatric palliative care for children with life-threatening or life-
limiting conditions and their families is often complex. Guidelines can support professionals …

[HTML][HTML] A shared decision-making model in pediatric palliative care: a qualitative study of healthcare providers

S Cai, L Cheng, R Wang, X Zhou, X Peng - BMC Palliative Care, 2023 - Springer
Background Pediatric shared decision-making (SDM) is a fundamental part of family-
centered care. Pediatric palliative care (PPC) is one of the more difficult fields for healthcare …

Aligning guidelines and medical practice: literature review on pediatric palliative care guidelines

E De Clercq, M Rost, N Pacurari, BS Elger… - Palliative & supportive …, 2017 - cambridge.org
Objective: Palliative care for children is becoming an important subspecialty of healthcare.
Although concurrent administration of curative and palliative care is recommended, timely …

Shared decision-making in pediatric palliative care

JT Stroh, BS Carter - Current problems in pediatric and adolescent health …, 2023 - Elsevier
Shared decision-making (SDM) with parents and adolescents is normative in pediatric
practice in North America. In this article we discuss how it is applicable to the practice of …

[HTML][HTML] Physician decision-making process about withholding/withdrawing life-sustaining treatments in paediatric patients: a systematic review of qualitative evidence

Y Zhong, A Cavolo, V Labarque, C Gastmans - BMC Palliative Care, 2022 - Springer
Background With paediatric patients, deciding whether to withhold/withdraw life-sustaining
treatments (LST) at the end of life is difficult and ethically sensitive. Little is understood about …

Medical indication regarding life-sustaining treatment for children: focus groups with clinicians

JD Lotz, RJ Jox, C Meurer, GD Borasio… - Palliative …, 2016 - journals.sagepub.com
Background: Decisions about medical indication are a relevant problem in pediatrics.
Difficulties arise from the high prognostic uncertainty, the decisional incapacity of many …

[HTML][HTML] Impact of a multifaceted education program on implementing a pediatric palliative care guideline: a pilot study

CT Jagt-van Kampen, LCM Kremer… - BMC medical …, 2015 - Springer
Background A national clinical practice guideline for pediatric palliative care was published
in 2013. So far there are only few reports available on whether an educational program …

Pediatric palliative care communication: Resources for the clinical nurse specialist

A Pirie - Clinical nurse specialist, 2012 - journals.lww.com
Purpose/Objectives: The purpose of this article was to highlight the lack of communication
skills pediatric practitioners have when delivering bad news and introducing pediatric …