Specialist palliative care is more than drugs: a retrospective study of ILD patients

S Bajwah, IJ Higginson, JR Ross, AU Wells, SS Birring… - Lung, 2012 - Springer
Background This study aimed to assess the palliative care needs of progressive idiopathic
fibrotic interstitial lung disease (PIF-ILD) populations in two London ILD centres. Methods …

Patients with fibrotic interstitial lung disease receive supportive and palliative care just prior to death

N Smallwood, J Mann, H Guo… - American Journal of …, 2021 - journals.sagepub.com
Background: Fibrotic interstitial lung diseases (f-ILDs) are often progressive and incurable.
As patients experience significant symptoms and have a poor prognosis, early palliative …

Specialist palliative care, psychology, interstitial lung disease (ILD) multidisciplinary team meeting: a novel model to address palliative care needs

SL Barratt, M Morales, T Speirs… - BMJ Open …, 2018 - bmjopenrespres.bmj.com
Introduction Patients with progressive idiopathic fibrotic interstitial lung disease (ILD), such
as those with idiopathic pulmonary fibrosis (IPF), can have an aggressive disease course …

The palliative care needs for fibrotic interstitial lung disease: a qualitative study of patients, informal caregivers and health professionals

S Bajwah, IJ Higginson, JR Ross, AU Wells… - Palliative …, 2013 - journals.sagepub.com
Background: While there have been some studies looking at the impact on quality of life of
patients with idiopathic pulmonary fibrosis, to date no qualitative research looking at the …

Barriers to specialist palliative care in interstitial lung disease: a systematic review

JW Kim, C Atkins, AM Wilson - BMJ supportive & palliative care, 2019 - spcare.bmj.com
Background Current guidelines recommend palliative care based on individual needs for
patients with idiopathic pulmonary fibrosis. However, patients with interstitial lung disease …

Development of tools to facilitate palliative and supportive care referral for patients with idiopathic pulmonary fibrosis

C Sharp, H Lamb, N Jordan, A Edwards… - BMJ supportive & …, 2018 - spcare.bmj.com
Objectives Palliative care is underused in non-malignant respiratory diseases, including
interstitial lung diseases (ILDs). We investigated current practices around palliative and …

End-of-life care in oxygen-dependent ILD compared with lung cancer: a national population-based study

Z Ahmadi, NG Wysham, S Lundström, C Janson… - Thorax, 2016 - thorax.bmj.com
Rationale Advanced fibrosing interstitial lung disease (ILD) is often progressive and
associated with a high burden of symptoms and poor prognosis. Little is known about the …

Palliative care in interstitial lung disease: living well

M Kreuter, E Bendstrup, AM Russell… - The Lancet …, 2017 - thelancet.com
Progressive fibrotic interstitial lung diseases (ILDs) are characterised by major reductions in
quality of life and survival and have similarities to certain malignancies. However, palliative …

Health care costs at the end of life for patients with idiopathic pulmonary fibrosis. Evaluation of a pilot multidisciplinary collaborative interstitial lung disease clinic

M Kalluri, J Lu-Song, S Younus… - Annals of the …, 2020 - atsjournals.org
Rationale: Even though idiopathic pulmonary fibrosis (IPF) is a disease with high morbidity
and mortality and no cure, palliative care is rarely implemented, leading to high symptom …

'I wish I knew more...'the end-of-life planning and information needs for end-stage fibrotic interstitial lung disease: views of patients, carers and health professionals

S Bajwah, J Koffman, IJ Higginson… - BMJ supportive & …, 2013 - spcare.bmj.com
The importance at the end of life of developing effective communication and meeting
information needs is recognised as being central to enhance patient and family centred …